Conversations About Death: Confronting End of Life Decisions

August 23, 2023

My brother delayed his cancer treatment for over a year. He was convinced his stomach problems were the work of parasites, the result of living in the Georgia woods. It was anal cancer. So it wasn’t much of a shock to either of us when his Portland oncologist said that his cancer was Stage 4, having metastasized into other parts of his body. Unfortunately, Ron still believes that it is possible to shrink his tumor and cut it out. His entire body is now the tumor.

I’ve been split into multiple roles since bringing my brother back to Oregon. One is to help him get the medical care he needs to fight his cancer. But another is to try to get him to be realistic about the prognosis. The doctors get paid to treat so that’s what they want to do. His doctors want to fight the cancer to the bitter end, and this end is very bitter. Last week his palliative care nurse was finally honest with him. That, at best, he had “several weeks” before the cancer takes him. A hospice social worker told me yesterday that, because Ron is severely underweight, “he will live longer off the chemo than on it.” I write this while he is sitting in the OHSU Knight Cancer Institute receiving his second chemotherapy treatment, knowing this cure may kill him.

I 100% get where my brother is coming from. If someone in the medical field told me, “You’ll be dead by Halloween,” I’d say, “Well, we’ll just see about that!” And then I’d throw my spinach smoothie in their face. Ron wants to fight and that’s a good thing. But it’s also time to talk about the endgame and how going out on his own terms might, just might, be better than barfing up endless chemo treatments, praying for it all to end, on the outside chance that a few more months of misery is worth it. This has to be his choice, but my brother doesn’t have a very good track record for making good choices.

So we’ve begun talking about hospice care. The word “hospice” has a specific connotation for a lot of people. Images of terminally ill elderly people on deathwatch, being pumped full of so many narcotics that they don’t know who they are. Hospice care has evolved greatly over the last few decades and is now all about quality of life, not just managing pain. Ron’s already on Methadone and Oxycodine, so he’s got the narcotics covered. But the chemo is not adding any quality to his life. The poison is stealing it from him. Medicaid in Oregon gives you the choice – chemo or hospice. If you want to bail on the chemo, the state makes sure you are taken care of. But you can’t do both.

So this is my brother’s conundrum, to receive the full care that comes from hospice, he has to give up on the (extremely slim) chance that chemo will “cure” him. He tells me he thinks that chemo will get the tumor (again, the cancer is now in several parts of his body) to a size where his cancer will be “manageable,” and I ask him what manageable means to him. His response is that then he can treat it with good diet and live a long life in a cabin in Tennessee. He then accuses me of wanting to “kill him off” so he won’t be a burden anymore.

In the abstract, conversations about death are hard. In the practical, they are nearly impossible. We believe we will exist, in some form, for as long as time itself exists. But we also want to be here now for as long as possible. I’m not ready to die. Are you? But we all do. All of us. There will even be moments when Donald Trump, LeBron James, and Taylor Swift cease to exist. (I’ve got $100 bucks on Trump, massive coronary, DC courtroom, March 2024.) We’re all just sacks of meat with an expiration date. But when that date starts getting close, I get why people try to renegotiate their deadlines.

I want my brother to choose hospice care. I want him to get off the torture train of chemo. I want to take him to the Oregon coast. (He’s never seen the Pacific Ocean.) I want the next weeks to be spent listening to music and laughing about the stupid stuff we did when we were kids in Stone Mountain. But I come off as the Grim Reaper for suggesting this might be the best choice given the bad hand he’s been dealt. He just wants to fight and I’m glad he’s not ready to give up. Sometimes hope can win over science. It’s his choice, but the clock is ticking.

If you want to help with Ron’s care, we are still taking donations at his GoFundMe. Maybe we’ll get to take him to the Oregon coast.  CLICK HERE

From Big Brother to Cancer Care Giver

July 23, 2023

What’s the John Lennon line about how life is what happens when you’re busy making other plans? I had this vision of flying into Georgia (on my father’s dime), rescuing my brother from his shithole hobo camp, and delivering him to a Portland cancer treatment facility, then watching his recovery from a safe distance. It didn’t quite turn out like that. 

When I got to my dad’s after landing in Atlanta, my brother, Ronnie, was on the phone, telling me I had wasted my time and that he wasn’t going to leave his camp in Cartersville, Georgia. I could tell he was afraid of the incredible change he was facing. Instead of suffering from his rectal cancer in a hell he knew, he was looking at relocating in a place far away from the Georgia piedmont. And he had never even been on a plane. I told him I wasn’t going to force him to do anything, I was just headed to come hang out with him for a bit. He’d been held up in a Quality Inn for a few nights because his pain was so great. He was convinced he was on death’s doorstep and just wanted to be left alone. This would have to be his choice.

Finally seeing him after two years was a bit rough. I thought about the last days of Howard Hughes but without the billions. His hotel door was propped up open so the Georgia heat and flies could come in as he lay in the bed. I went into operational mode. Food, coffee, and whatever else he needed. Gradually he realized he would be better off in Portland. He wasn’t ready to die just yet. I got a room next to him and we made plans to strike his camp later in the day.

He had been living on a hill behind the Cartersville IHOP for seven years. How he survived, I’ll never fully understand. Another blistering summer in rapidly evaporating Georgia would have killed him. His camp was a tent, full of spiders, and a year of garbage hidden under tarps, and a dozen gallon jugs of urine that served as his bedpans when he was immobilized by pain. It wasn’t pleasant but that thought that there was something better waiting motivated us to clear the camp and head to Atlanta to catch a flight to the land of Obamacare. 

The journey home was a challenge. Whatever you do, don’t fly Frontier Airlines. It’s the nightmare airlines. Just getting a wheelchair to get Ronnie to the gate at Atlanta Jackson Hartsfield Airport was an ordeal. Then, because of cancelled flights, I had to race him to another gate on another concourse and hope that delayed flight would get us to our connecting flight in Las Vegas. The Las Vegas to Portland flight was cancelled and they told us they could get us on another flight home three days later. I told them he was a cancer patient who had an important oncology appointment the following day and Frontier Airlines ticketing agent just shrugged her shoulders. So we headed to another terminal (Ron still in a wheelchair) and bought a ticket for that night on Spirit Airlines. (I never thought I’d say this, but Frontier makes Spirit look like Delta.) We finally made it to Portland, but Ronnie’s backpack didn’t arrive until six days later, with all his electronic items stolen from the bag. Frontier sucks.

After a day of adjusting to West Coast time, my job driving my brother around began. First to an oncologist in Tualatin, south of Portland, where we found out his cancer was Stage 4. Then to a residential facility I was hoping to move him into, where they told us it would be a few weeks. This was happening the week I was driving Cozy to and from art camp, way out in the traffic hell of Beaverton. Endless calls to Medicaid to get his long term care interview moved up from late August, making CT scan appointments, preparing meals, and administering pain meds every two hours.

Suddenly, I’d become an in home care nurse.

It just seemed really clear that this was the obvious role to step into. What else should I do? My brother is battling anal cancer. He was doing it alone in the Georgia woods, and now he’s doing it on my couch in a state that has legal weed. 

The legal weed bit has blown his mind. It’s been hugely helpful with his pain and appetite (although it wasn’t helpful with the Taylor Swift video I tried to make after we got high and watched Yellow Submarine.) In the conservative state of Georgia, possession of less than an ounce of pot is an automatic year in prison, on the taxpayers’ dime. In the liberal state of Oregon, an ounce of weed just means you’re running low on weed.

Once the pot and narcotic pain meds started to work, Ronnie started to feel human again. He’s got an amazing oncologist at OHSU’s Knight Cancer Center and wonderful palliative care coming. We’re still trying to find housing for him. Going through chemo on my couch is not an option. Keeping him in colostomy bags and diapers with an 8-year-old running around is a less than an ideal setting for him and my family, but he’s, literally, out of the woods. Sitting on our porch in the cool Portland night air (the opposite of Georgia), has allowed us to connect in a way we never did when we were kids. It started to feel like this experience was healing me as much as it was intended to heal him. 

It’s certainly a left turn from my normal summer, teaching on line and working on my side projects, but the support of Cozy, Andi, and Jaime makes it work. Watching Cozy and her uncle bond has been a thrill (Cozy is ferocious on the board games), and Andi has helped me remember how important this effort is. The moments I can escape with Jaime for a bit have kept my battery charged and her concern for my brother just fills my heart. And I’ve been able to show Ronnie some of the joys of my little town, like green tea at the Chinese Garden and way too much sugar at Voodoo Donuts.

Fifty years ago, everything was a constant fight between us. I never would have thought of trying to comfort him. Now my hand is on his back as the doctor tells him that his cancer has spread from his rectum to his lymph nodes and lungs. I don’t put him down for his assertion that he can “shred” his tumor with turmeric and sound waves. I just encourage him to listen to his doctors, who are among the best in America. This isn’t Georgia. Under Oregon’s expanded Medicaid, even the poorest among us have access to be best care.

Part of employing empathy is seeing this through my brother’s eyes. He has to be scarred shitless about this diagnosis, that is close to a death sentence, with a treatment option that will be a true test of his mettle. He’s lived as a hermit in the Georgia woods for ten years and now he’s in the hipster metropolis of Portland (Just the number of people walking around has shocked him. Nobody walks down the street in Cartersville, Georgia.), and, on top of all that, he has to trust a brother that has showed him more hostility than love in his life. I can’t imagine what’s going on in his brain. Thank God (Oregon voters) for legal weed.

Ronnie has been incredibly appreciative and acknowledges turning my living room into a cancer ward has been an imposition. But I thank him. This opportunity to help him has been good my for soul. If I can expunge a lifetime at anger towards him, I can deal with my anger issues for good. The other day he reminded of me when I knocked him out for calling me a “baby killer” in front of my girlfriend who had just had an abortion. He’s not the same person, and now I have a chance to be different.

Healing can take many forms. For my brother, it’s going to be regular radiation and chemo treatments, a bunch of pot, and hopefully a bed of his own. For me, just being here for him is the healing I needed.

Ron’s GoFundMe campaign: https://www.gofundme.com/f/help-house-my-brother-for-cancer-treatment?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer

He Ain’t Heavy, He’s My Little Brother

July 7, 2023

My little brother, Ronnie, and I took sibling rivalry to a new level. In fact, I’m quite sure we sent each other to the Emergency Room when we were kids. Our constant fighting must’ve driven our parents crazy. I know it did for me. It was the cause of some desperation, at age 16, when I first thought about throwing myself into a lake and drowning. (To be clear, the lake was a Stone Mountain, Georgia pond that was maybe three feet deep.) As an adult, I stopped talking to him for 17 years after he threatened to kill our mother. He did some time for that one.

Things have changed with my brother.

We started to reconnect in 2012, when I was back in Georgia. We visited some of our old stomping grounds in Stone Mountain and I learned how to talk to him in a non-antagonistic way. Ronnie has had a challenging life and I think our sibling dynamic played a roll. I wasn’t exactly the best big brother. I think Ronnie was the first target of my rolling anger that was the result of my abuse. I relished in the fight as that was my standard mode. When I could have been protective and nurturing, I was combative and cruel. So the reconnect was a chance for repair, especially when my bother fell into homelessness.

For the last few years, my brother has lived in the woods in Cartersville, Georgia, north of Atlanta. Cozy and I had lunch with him and my father in 2021 at the IHOP near his camp and he was skin and bones. We didn’t know it at the time, but he had cancer. We didn’t talk for 17 years, but we talk pretty much every day now, unless he can’t make it down to Kroger to charge his phone.

Trying to find Ronnie adequate cancer care in a backwards red state like Georgia has been next to impossible. Dissertations have been written on how the Republican Party has conned poor and working people to vote against their interests to pad the pockets of elites, but suffice it to say, being sick and poor in Georgia is a death sentence.

So I’m bringing my brother to Oregon.

The assumption in Georgia is that every poor person who claims to be sick is only after OxyContin, so the insane amount of bureaucratic bullshit that is required to even see a doctor guarantees poor and homeless people are cut out of the health care system. Ronnie’s cancer doctor was 46 miles away at Emory University and he was routinely too sick to even organize a ride to the city. Tired of missed appointments, they dropped him from their patient roll, a cost cutting measure that shortened my brother’s life expectancy. Social scientists know we can predict your life span by the zip code you live in and the death gap for Cartersville, Georgia is as wide as the Tallulah Gorge.

Oregon, on the other hand, expanded Medicaid under Obamacare, making sure low income people have first rate health and dental coverage. It took a matter of minutes to get Ronnie signed up to the Oregon Health Plan and get him space in a residential facility and an oncologist to start his cancer treatment. My mother was dumbfounded by how easy it was to get my brother the services he desperately needed. “Well, I live in a blue state, Mom,” I told her. Now I just have to get him here.

Early tomorrow morning, I’m catching a flight to Atlanta (paid for my father) to collect my little brother. The nature of his cancer is among the ugliest, anal cancer. He hasn’t been able to access the health supplies he needs so he’s often sleeping in his own waste. I’ve been Amazoning him colostomy bags, but he needs so much more, including diapers and clean clothes.  Getting him in shape to fly back across the country is going to take some work. He’s in great pain, without access to any sensible pain medicine, often sure he’s not going to live through the night. I assure him Oregon also has legal weed to help him through those nights. I would bring a bag of THC gummies with me from the corner pot shop, but in Georgia that would get you a one way trip to prison. (The penalty for possessing less than one ounce of marijuana is up to one year in prison and up to a $1,000 fine.) Did I mention that Georgia sucks?

These may be his last days or the wonderful care given to low income people in Oregon may extend his life considerably. Anything is better than being poor and sick in the South. I’m banking on him being alive when I get to Cartersville and being in good enough shape to get on the plane. I’m looking forward to our cross country trip and getting to know the guy I didn’t have time for when I was a kid.

DWM: Dating While Married

June 30, 2023

What are the rules of being separated? Nobody sent me the manual. Also, is there a handy guidebook to diagram the complexity of romantic love? I’m in the weeds out here.

The day A moved out the fall of 2021, I thought it would be a short term break while I figured my shit out. I was just at the beginning of understanding how my experience of childhood abuse had been controlling my brain. Therapy, some good reading, and quiet reflection, and we’d be fixed in a few months. A week after she moved out she told me she was “dating” someone (well, that wasn’t exactly the word she used) and that person quickly became her boyfriend, which didn’t help my intention to calmly become a better person.

In fact, it did the opposite. It unleashed my inner redneck. I’d go the bar that he frequented, order a double bourbon and imagine kicking his ass. Not exactly the practice of someone who leads workshops on mindfulness. Gradually, I came to accept her choice and focused back on my own work. If she’s happy, I’m happy. Blah, blah, blah. We were talking about divorce, but it always seemed to be on the back burner. And every time she’d breakup with this guy, she was back in my arms.

But by the end of 2022, I thought I should try this dating thing. I missed having a partner in crime. Someone to get out of the house with. Also, I was still angry my wife was spending all her free time with this guy. A friend suggested I go on the Bumble dating site. So I set up a profile and met some really great women; a flight attendant, an artist, and a movie producer, who I went to NYC to stay with for a week and is one of the most accomplished women I’ve ever met. But I felt like I was a performing a role; A and our fantasized reunion always on my mind. It just seemed like a hoax. So I cancelled Bumble and focused on winning her back.

Then all that changed.

Two weeks ago, I was feeling aggrieved because I felt like A was routinely disregarding me and I was all in my head about it. It was Friday and the start of her week with Cozy (and the end of her week with her boyfriend) and my Pisces brain was going to claim I had a date with a beautiful lawyer just to drive a splinter in. Then I took a left turn.

According to Facebook, I have over 2,800 friends. Some folks go way back to high school, some I don’t know how I know, and a whole bunch are dead. But there was someone in my feed who I didn’t know how I knew, I just knew she owned a Portland dress shop and was stunning. I found myself exploring her pictures, with her dogs, her family and friends, and travels. So I took a chance and messaged her.

Me: You’re always in my feed so I thought I should say hey!

Her: How are you doing? I’m rarely on Fb and miss a lot of messages so if I ignore you, I swear it’s nothing personal.

Me: Was just looking for some live music tonight. I need tunes.

Her: Ooh did you find anything good?!

Me: Usually I go to No Fun on Hawthorne for random bands. You should come out!

Her: Sounds fun! I’m down

And that’s how my relationship with Jaime started. She walked into a favorite SE Portland joint of mine, a bar called No Fun, and it was like a brand new chapter was about to unfold. We immediately clicked, like nothing I’d experienced before, while the band played TLC and Britney Spears songs. Sitting at the bar, we began to plan a trip to Paris and I said, “I’m going to kiss you tonight.” Then we ended up on the dance floor at Goodfoot, another local bar, for Soul Night, and by the second song we were already a couple.

I can’t explain what happened to my brain. All that bandwidth that had been taken up by my obsession with A, winning her back and/or hating that she was with this guy who I detested, just vanished. What did it mean? Was I not in love with her? My love for her had defined every day of my life for the past ten years. But my love for her was often about “my love” and not about her as a person. I was unable to repair that disconnect to lure her back. But now all I could think about was Jaime. It was like a channel had switched.

At first I felt the need to keep this new relationship on the down low. I didn’t know how to “frame” it. But after the April car crash that Cozy and I had been in (that totaled the RAV) and the cancer scare earlier this month, I know every second in this life matters.

Jaime and I quickly became connected at the hip. I wanted to learn everything about her. I wanted to not make the mistakes of the past. In a few days I was convinced that I could build something with her and finally release A from the crushing weight of being tied to my project. A seemed relieved that I had found someone, which was both nice and annoying. A week after our first meeting, A OK’d Jaime and I taking Cozy to a Portland Thorns soccer game. Seeing how wonderful she was with my daughter sealed the deal and I asked her to be my girlfriend.

I truly don’t understand the nature of love. My ten years with A, including the year and half separation, still carry a real meaning to me. She’s the mother of my child, but she has a boyfriend who I know she loves. I know there have been people rooting for us to reunite (and others who haven’t). When she told me a year ago, “I love you, but I’m not in love with you,” I laughed it off as the standard doldrums of marriage. But now I feel the same way.

All I know is that my heart has been kidnapped by someone I want to be with as much as possible. Cozy loves her madly and so do I. It came from out of the blue, but I know it’s real because she has me listening to Taylor Swift and thinking about my words before I say them. It may just be a summer affair or it may be something with some staying power. I don’t know and I don’t care and it feels damn good.

It’s nice not to worry about what people think. I just want to put all these lessons to work to keep this magic moment going that started on a Friday night in a bar called No Fun. As Taylor sang, “A string that pulled me, out of all the wrong arms, right into that dive bar. ” There is a golden string that now connects me to her and I can’t help but just say, “Yeah, well, it’s divine intervention.”

Tonight at 8:30 will be our two-week anniversary and it feels like I’ve known this person for a lifetime. Two weeks from now, I might be saying, “What the hell was THAT?” I have a feeling that we’ll be doing just fine. Love is a beautiful thing.

NOTE: I let Jaime read this before posting it. If she’s good, I’m good.

Sept. 26, 2012: My 10-year Reconstruction Begins

September 26, 2022

Everything changed on September 26, 2012 at 10:15 AM (maybe 10:17, she was late). But first, the backstory. And it’s messy.

My forties were emotionally confusing. I had successfully risen up the academic ranks to a tenured full professor position but my love life was always in turmoil. I hadn’t yet connected the abuse I experienced as a child to the bad patterns I had perfected in adulthood. And work and romance tended to overlap. Pew research reports that most Americans meet their spouses at work, and I had habit of dating former students (with the emphasis on “former.”) While the university had no policy against relationships among faculty and university students, that line mattered to me. After grades were turned in, two consenting adults should be able to do whatever they want. It never was an issue, nor should it have been. There were several respected professors who were married to former students. Let love rule.

About a dozen years ago, I had a brief relationship with a former student that started off fun but, as new relationships sometimes do, quickly hit a dead end. It was clear that not only were we not a good match, there were red flags popping up all over the place. (The university would later deem this woman “unstable.”) I tried to end it amicably but she was not having any of it and went into full Glenn Close/Fatal Attraction mode. She found allies in the administration to champion her cause. They’d drag me into regular administrative tribunals and lecture me about “power dynamics.” (One of these administrators was having a “romantic, amorous, and/or sexual” relationship the administrator who had appointed her to her six-figure job.) I hired a lawyer who shut it all down and I recorded her confession that she made all her accusations up. Hoping to expedite my return to normalcy, I offered to sign an agreement that I wouldn’t date anyone who was enrolled at the university. Although I did briefly date an administrator after that. Because irony won’t be lost on me.

September 24, 2012 was the first day of the 2012-2013 school year and I had asked to teach a Sociology 101 class that started on Monday mornings. I wanted to be the first professor a fresh batch of college students would encounter. So I put a lot of work into that first class. It was a true performance, a sermon on the salvation of critical thinking. There’s always a few students who blow off the first class because they think nothing important happens on Day 1, and it always annoys me because everything important happens on Day 1. I make note of their absence and develop a grudge. One of those absentees was named Andrea Barrios.

So before she walked in late on Wednesday, I already had a bias against Ms. Barrios. Then she walked through the door. I’m not being overly dramatic when I say it felt like being struck by a bolt of lightning. It was an out-of-body experience. (She has told me of a similar experience.) My first clear thought was, “Oh no, universe, do not put this woman in front of me. I signed a contract!” as she sat in the front row and smiled. I was on the tail end of a two year relationship with a wonderful woman that was sputtering because I didn’t have a basic understanding of how to be in a relationship. But I was a good professor and stayed perfectly professional the entire term (while my teaching assistant routinely hit on Andrea). I stayed focused, as hard as that was.

At the end of the term, I posted on Facebook that I was going to see local singer Storm Large at dark club to celebrate the end of the quarter. It was a rainy December night and I was sitting by myself at the end of the bar when Andrea walked in. Of course I was thrilled to see her. She was probably the smartest person in a class of a hundred students and she radiated. She bought me a shot of tequila and said we should hang out sometime. I told her I didn’t date students. She bought me another shot of tequila and we ended up making out at the bar.

A mature man would have stopped right there. I began building my career as sociology professor at 17 as a freshman in college.  It didn’t make a lot of sense to risk it over a woman in her twenties, as fascinating as she may be. I invited her to dinner the next night so I could explain the situation, that I had signed a contract with the university and if I dated her I could lose my job. “Maybe nobody will find out,” she said. That’s all I heard. I was already head over heals in love. I just wanted to be near her. She tried to get into another school to avoid the conflict but that didn’t happen. We were two adults who just wanted to be together. Two years later we were married with a baby.

But it wasn’t easy for her. I was only just starting to figure my shit out. The first lesson was how I tended to keep old relationships on the back burner in case the current relationship went south (a product of deep abandonment fears). I learned that only burned the person I was with and I almost lost Andrea. Fortunately, it was a surprisingly easy fix. So many of my other issues, wrapped in my narcissistic tendencies, made her feel invisible. But, as a tenured professor, I represented the stability she craved. Then all that changed.

This is the part of the story that involves a psychotic inmate in an Oregon prison. (“Psychotic” isn’t hyperbole. It’s in his medical records.) He was a “former” racist skinhead who I had worked with before his incarceration. He had decided, for some stupid reason, that I had aggrieved him. He made it his personal mission to destroy me and found allies in the university who were endlessly annoyed by my role as a faculty union agitator. I was dragged back in before the administrative mob, with our daughter in her baby carrier, and asked me if my wife was a university student. “Yeah,” I said, “She’s taking an online Women’s Studies class.” That was it. They had me. I was toast.

My long career was successfully destroyed, not by a nazi skinhead, but my failure to make better choices. I could blame Glenn Close girl, psychotic skinhead, or a university administrator who was banging her boss, but it all came down to bad decisions I made over the course of years. I just wasn’t ready to accept that fact.

Who was I without my career? Certainly not the stable provider Andi and our baby needed. My issues began to cascade. I thought I was one of the good guys, but I centered my anger, creating less and less room for her in the relationship. To her credit, she not only finished her undergraduate work but earned a Master’s Degree and began teaching her own classes. All while I tried to pick up the pieces of my life and figure out how the hell to be a good father and husband.

There are numerous details but suffice it to say she told me in very clear terms what she needed but I was so wrapped up in my pain and anger that I repeatedly failed to deliver. It was when things were at their worst, that I started remembering the experiences of early sexual abuse. But it’s not like one has a realization that leads to an immediate change, “Oh, I was abused. Now I can stop being a self-centered prick.” I still had a ways to fall before I hit the bottom. And that happened on last New Year’s Eve when Andi told me she was in love with someone else. The floor opened up and I was ready to cease to exist. I felt beyond repair. Beyond redemption. There was nowhere to go but oblivion.

After that, as I have written much about, I found a wonderful therapist who helped me not only connect the dots from my trauma to my behavior, but who gave me practical tools to start to change the patterns. My trip to Ukraine to resettle refugees this past spring encouraged me to be a source of healing instead of pain. And Andi’s patience helped me to see how childish my behavior tended to be. I’ve learned that love is more than a feeling but behavior in the small moments; a comforting look, a curious question, a snarky text not sent.

I’m marking this ten year point for two reasons. First, that psychotic skinhead is out of prison and still threatening me. I need a public record of my journey. But the main reason is that this ten year effort to deconstruct myself and build a better version of me may not be enough to be Husband 2.0 to Andi, but it’s been worth the attempt. We all can repair harm and fix ourselves to reduce harm to the people we love. I’m proud of who I am becoming.

The Rescue of the Girl in the Red Coat: Gratitude for One Ukrainian Dad

April 17, 2022

It wasn’t until my tenth day home from my Poland-Ukraine trip that I really had a chance to process what the experience meant and why I felt so different upon my return. I knew I was different but I wasn’t sure why or how. I could write it off, as I had been describing it to friends, as a “thimble full of PTSD,” but it was something else. My therapist asked me for the one resonating image of time in the conflict zone. There was no hesitation in my answer.

Before crossing into Ukraine we went to a town on the Poland-Ukraine border called Korzowa. The Polish government had taken a massive abandoned shopping mall called Centrum Handlu and turned it into a refugee resettlement center. We were there to retrieve a mother and her kids and get them to a safe house. When we arrived in our passenger van, I immediately recognized the building from the news reports I had watched in Portland. I saw the chef from World Central Kitchen, José Andrés, preparing meals outside the building and the trucks bringing in supplies from across Europe.

Sally, our fearless leader, reminded me not to take pictures inside, as these severely traumatized people needed compassion and not to be treated like zoo animals. That was fine because the memories of the sea of displaced humanity inside the mall will forever travel with me.

It was midday so the thousands of cots were mostly stacked up but there were still many parents and children trying to sleep in the bright industrial lights. We found our family in an arrangement of couches they had made their “room” for a few days, a mother, six girls, and a Pekingese, who peed on the floor while we waited for their shelter discharge papers. It was clear that many of the Ukrainian children were afraid of strange men because of what they witnessed from the Russian soldiers who drove them from their homes, so I did my best to be cheerful, always sharing pictures of my daughter, Cozy.

While we waited to be released, I scanned the countless people who were trying to figure out the next steps in this insane disruption. My eyes stopped on a father sitting in the middle of the floor with a few bags and his daughter, who was wearing a red coat. The look on his face was of complete loss. His country was suddenly at war, his life as he knew it had evaporated, and he had no idea what was going to happen next. He had his hand on his daughter and occasionally stroked her hair, but he kept his face from her eyes. I held my phone at my waist and took one picture. I didn’t want to forget his face. That could be Cozy and I so easily.

Reflecting on the moment with my therapist, my first feeling was of sadness. While I was there, I saw so many families turned into “refugees” overnight as the Russian rockets crashed into their homes. But the more I thought about it, I started to see him as a hero. He was Atticus Finch, making the tough choices to protect his child. The refrain across the border was “Heroyam slava!” (“Glory to the heroes!” In Ukrainian.) This father wasn’t shooting at Russians, but he was still doing something heroic.

And his daughter was wearing a red coat. The girl in the red coat from Schindler’s List had haunted me during my day at Auschwitz the following month. But unlike that girl, who would end up in a pile of corpses headed for the crematorium, this girl in a red coat would escape to safety. Because of her father.

While in Poland and Ukraine, I routinely reflected on how lucky I was. A home, a family, safety. There was a moment when we were heading west, across the Ukrainian countryside with another displaced family in the van, that I noticed the color of the sky was the same color blue as on the Ukrainian flag. I thought about how that same sky was over my daughter who was safe with her mother, over 5000 miles away. The endless pain caused by stupid anger was evident on the faces of the Ukrainian children I met. What could I do to reduce the pain from anger in my own home?

When the momentum of the global travel began to subside (my sleep schedule is still on Poland time), those images and lessons began to settle in the front of my brain. Andi and I had an honest discussion about our relationship, her relationship, and the likely direction of things. The anger that had been there just lifted. I’d seen too many families ripped apart by pointless anger. I’d seen the trauma on the faces of kids whose parents were pulled in opposite directions and unable to be fully present. Things immediately improved between us. Yesterday we took Cozy to an Easter egg hunt and Andi put her head on my shoulder as we watched our child race across the grass. And today we are going to a Thorns game as family. It feels like a spring rebirth. All it took was me seeing that Ukrainian father and his girl in the red coat.

I don’t know how the war in Ukraine will play out. The same is true with events in my life. We both have some rough months ahead. In Krakow, I started the process of getting “лава Україні” (Glory to Ukraine) tattooed on my arm and finished it in Portland. The blue of the Ukrainian flag inked into my skin will serve to remind me that the love that connects us across the planet will always win out over the anger. This Easter Sunday, that suddenly means enough. Upon returning home I learned that Oliwia Dabrowska, who played the girl in the red coat on a Krakow street in Schindler’s List is now 32-years-old and has been doing refugee work in Poland at Centrum Handlu. We probably crossed paths. She’s a hero, and, OK, maybe I’m a thimble full of hero to my daughter and to those little girls I helped get to safety. Heróyam sláva!

Taking You Lumps: Remote Gender Work

November 19, 2021

Blogs are ultimately about personal journeys. I began this blog on November 24, 2014 as a daily chronicle of my life as stay-at-home dad. I intended it to be me channelling the porto-feminism of pioneering house-husband John Lennon. That lasted exactly one day. By November 25th, I was writing about the uprising in Ferguson, Missouri in what would be the first in a long line of posts about the Black Lives Matter movement. In those seven years, my writing has ranged from family life stories to global gender politics and everything in between.

There have been two pillars in this writing. The first is the firm belief that we are all works in progress, never fully complete. We can’t make the world a better place if we are not willing to make ourselves better people. And mistakes will be made. That’s part of the process. The second pillar has been how I’ve benefitted from the input from my wife, Andrea. Her patience, strength, and wisdom have pushed me to be that better man. And her experience as a member of a few different marginalized populations has allowed me to confront my own privileges head on. If I could only give her as much as she’s given me.

So here’s one of those entries about the need to evolve. 

It’s been clear in this year of revelations that I still have a lot of work to do on myself. Uncovering my abuse story has helped me see the roots of some of my narcissistic personality traits, but that doesn’t automatically cure them. So Andrea has moved out so I could focus on that work. She got a studio apartment nearby and I helped her move in. The three of us had dinner there that first night as I let this separation settle in. We talk constantly and she’s endlessly encouraging. We have dates planned and I bring her coffee in the morning. But this is time set aside for me to make my mindfulness practices my natural way of being and for her to figure out if the woman she’s become fits with the man I’m becoming.

I have a pretty heavy lecture in my criminology class about domestic violence and about how battered women who flee abuse are as likely to be killed by their male partners as they are by staying with them. (Then I tell them to watch Sleeping with the Enemy and listen to “Goodbye Earl” by the Dixie Chicks.) Research on wife-killers shows these man can’t handle that “their” women have been rejected and just snap. It’s the ultimate act of patriarchal control.

While the thought of violence has never crossed my mind, I’ve never been very good at break-ups, centering my emotional pain instead of what’s best for my (former) partners. Just ask my first girlfriend who ended our relationship so she could spend a year studying in Paris. I got to Paris a few weeks before her and spray-painted her name all over the city, including on a stature of Moliére at the Sorbonne, where she would be enrolled. I thought I was being wildly romantic, but I was just being wildly creepy, inserting myself into her post-Randy life in the City of Light.

So the evolved version of me has kicked that version of masculinity to the curb. This is about what Andi needs right now and how I can listen and deliver. Certainly 2021 has been filled with examples of me not doing that, including plenty of mad examples of me freaking out as I fell down the rabbit hole of panic and defensiveness that were shaped by a lifetime of acting out the patterns created by my childhood abuse. Putting in the work is under way. I finally feel like an adult and instead of a petulant child and it feels good. I enter this phase with respect, grace, a mountain of admiration for this woman who I will get to know in a completely new way.

My great hope is this process won’t take long. Apartments in Portland are not cheap and it’s coming out of her pocket. We have a trip to Paris planned for this spring and that spray-paint will have long faded away. I’m committed to making that the case for the version of me that took her for granted. Faded away like a lovelorn teenager’s graffiti. 

Confronting Misogyny in Family Feud America

November 13, 2021

I think there was a naive hope that when the Orange Führur was banished from the White House (and Twitter) that the levels of toxic masculinity would ease off a bit. But this is patriarchal America and misogyny is our most hallowed value. Brittney Spears might be free, but the alt-right regularly refers to our vice-president as “Cum-Allah” and continues to plot its boogaloo boy revolution. Nothing triggers fragile men like ending middle eastern wars and a new Adele album.

I was reminded of this one night when the three of us were chomping on burritos while watching the produced-in-Atlanta game show Family Feud. I’ve enjoyed it since the Richard Dawson seventies and Steve Harvey does some pretty hilarious adlib comedy. It seemed like some harmless family entertainment since we’d burned through every episode of the capitalist propaganda-fest that is Shark Tank.

I’d noticed the “survey says” answers on the show’s gameboard occasionally went a little “off color” to go for the cheap laugh, but the Feud really showed its true colors one November night. The question was, “What is one thing a man could do that would cause his wife not to stand up for him.” Of course, the top answer was “cheat,” but when it flipped up on the gameboard what the oh-so-sophisticated writers had for the winning answer was, “CHEAT/GET A HO PREGGO.” I looked at Andi and she looked at me and then we both looked at our 7-year-old daughter. And then we shut the TV off.

Steve Harvey didn’t say anything about it and neither did anyone else as far as I can tell. This is how normalized sexism still is in 2021. If a woman gets pregnant with a married man, she must be a whore. And the chorus of “It was a joke! Get over it!” comes in to make the degradation of women just part of the normal background noise. Nothing to get upset about. Imagine if the “joke” about the “ho” had been about a “coon” or some other racist slur. We’d have heard about it then. Racism gets a rally and sexism get a yawn. That’s because patriarchy goes back a lot farther than white supremacy. And white supremacy goes way back.

This was playing out the same time that Arizona Republican Paul Gosar (who is a dentist and sits in the United State Congress) was joking about violently murdering Rep. Alexandria Ocasio-Cortez on Twitter. And this complete psycho (visit his Twitter feed if you want a glimpse of the current state of Idiocracy) is still seated in the House of Representatives. This is how little we value women and girls in our country. Afghanistan, hold my beer.

I was reminded of how far we hadn’t come, babe, when we were shopping for our daughter’s Halloween costume. The costume store had segregated the costumes by gender (separate but definitely not equal). In the kids section, the boys costumes were various superheroes, serial killers, and Mindcraft stuff. The girls section was primarily, sexy nurse, sexy zombie, and sexy schoolgirl. These were the costumes for second grade girls. Cozy picked out a “sexy devil” costume that we figured we could modify to not catch the eyes of the Jeffrey Epsteins in the neighborhood. The sexualization of elementary school girls is not new but when it’s your second grader, you want to burn the costume store, Spirit Halloween, to the fucking ground.

I know this giant tanker of sexism takes time around. More women are now graduating from college than men. And women have outnumbered men in the workforce since 2010. But it’s the everyday sexism that cuts women and girls off at the knees. And it will continue to sabotage their deserved equity unit men say this must stop. (I zipped off a fervent Tweet to Steve Harvey and his show which we will no longer watch). I can only shield my daughter from so much sexist bullshit. I’m gonna need some help from my brothers in arms.

Freedom Morons: What am I supposed to think about people who refuse get vaccinated?

August 27, 2021

“Medical tyranny!”

My capacity for empathy is really being challenged in 2021. The Delta variant is raging across the country, now putting children in hospitals. ICU beds are filled to capacity with unvaccinated COVID patients who are not vaccinated because they didn’t have access to immunization. They chose to be unvaccinated. Over 80 million Americans are still unvaccinated. A recent poll found that 29 percent of Republicans refuse to get vaccinated. (Side note: I’m old enough to remember when Republicans were private school snobs and Democrats were knuckle dragging factory workers. Now Democrats are the over-educated Volvo drivers and Republicans are the Neanderthals who believe whatever noted white supremacist Tucker Carlson tells them to believe. “The election was stolen!” “Tom Hanks is an alien pedophile!”)

Variants rage through America and kids are on ventilators because of these people. A North Carolina study found that the unvaccinated are 15 times more likely to die of COVID-19 than the unvaccinated , but there’s an anti-mask rally coming to your town. We’re 10 minutes away from another economy-crushing shutdown because MAGA Mike hates the CDC and thinks Dr. Anthony Fauci is out to destroy America. I’m not talking about cancer patients and other immunocompromised people who can’t tolerate the vaccine. I’m talking about people like Marjorie Taylor Greene who equate mask mandates with the Holocaust. I’m talking about people who claim they have “medical research” to back up their positions, but none of it is in peer reviewed science journals.

What am I supposed to think of these people?

The sociologist and educator wants to see these people as victims. They’ve been manipulated by right-wing media and self-serving politicians, like Florida governor Ron DeSantis. They’re the result of 40 years of defunding education that’s replaced scientific research with something you saw on YouTube. (Reading is hard.) We have failed these people and they are dying because they think the FDA’s full approval of the Pfizer vaccine is “fake news.”

Or maybe they’re just idiots.

These people don’t trust the “the science.” That is until they get sick and show up at the hospital asking those same medical scientists to save their assess. Heaven help you if you have a stroke or a heart attack right now. The hospital is chocked full of covidiots, who can’t say they were wrong because they have ventilators shoved down their necks. There is always prayer, I guess. Good luck with that heart attack! I’m praying for you.

I want to be compassionate, but I’m just angry. I’ve seen these Mensa Society members at town halls and school board meetings screaming about FREEDOM! They want to be free to unmask their kids in school and go to Dairy Queen for the Flamethrower Combo with their face uncovered. “I’m not anti-vaccine. I’m pro-freedom,” they robotically say. They’re dooming their children to the ICU and the rest of us to an endless pandemic. I’m free to walk down the middle of I-5. That doesn’t mean it’s a good idea. Freedumb!

Of course, there are endless stories of these folks ending up in the hospital, wishing they would have gotten the vaccine. A whole lot of them die. Should we laugh? Tweet, “I told you so!” Make a comment about Darwin and the thinning of the herd?

There’s an old adage in comedy that says, tragedy + time = comedy. It’s probably too soon to laugh at the anti-vaccine people who have died. That includes the pathetic conservative radio host Phil Valentine who regularly spread lies about the coronavirus and the vaccines on his syndicated show. He died last week of COVID. They say God has a sense of humor and I’ll just leave it at that.

I wrestle with this issue because my mother is one of these covidiots. I generally think of her as an intelligent person, but, now in her late 70s, she’s become influenced by whatever crap she reads on the internet. Her mother, once a psychologist, fell under the spell of televangelist and prostitute funder Jimmy Swaggart in her later years and gave the family inheritance to the Jesus Man on TV. Similarly, watching my mother’s magical thinking being exploited by internet based mis-information is just heartbreaking. “Well, I heard…” You know what I heard Mom? People like you are dying right and left.

While I was in the basement, making it through my mild case of COVID earlier this month (I had the Johnson &. Johnson vaccine), she was a comforting voice, calling from Georgia. She had refused to get vaccinated and I tried to explain to her that the reason I was sick was because the unvaccinated have created a petri dish that has allowed the much more deadly Delta variant to spread. I begged her to get vaccinated. Being 78 in Georgia and living with her (also unvaccinated) grandson puts her at high risk. Finally, out of frustration I told her not to call me until she was vaccinated. I haven’t heard from her since. She chose the lies over her son.

It’s like America is taking a national IQ test right now. I used to joke there were two types of people in the world, those that love cilantro and idiots. Just replace “love cilantro” with “got the vaccine.” I’m cool with you willing to die for your “freedom,” but I’m not cool with you putting the rest of us through hell to prove your stupid point; that you’re stupid. And your stupidity is upending my freedom to dive into a mosh pit or know my daughter is safe in her classroom from your disease (excuse me, I mean “hoax”).

Like I said, I’m wrestling with this. I’m 90% fed up with these idiots and want to deny them entry into the hospital when they get sick and realize they need some of that science. But 10% of me still is looking for ways to reach these folks. And that includes my mother.

NOTE: Within 24-hours this post had already attracted the righteous wrath of the QAnon bozos. Lordy.

Mindful Meditation: Save me, Ringo!

July 15, 2021

Let’s be honest, the pandemic has brought us some good things. For example, there are people who will deliver vanilla lattes to your home and text you when they are on your doorstep. The 2020-2021 lockdown was also a great time to work on ourselves and our relationships. Besides the long conversations with my wife about what I might need to tweak in my own psychodynamic, I read a lot that put me on a path of internal work. Books like Get Out You Mind and Into Your Life, and You Might Be a Narcissist If…, and (currently) Why Do I Do That? Psychological Defense Mechanisms and the Hidden Ways They Shape Our Lives. As an educator, I want to de-stigmatize the effort to do self work. Let’s be honest, we all could use a little help to be better people

But what really changed the game was meditation.

As a Beatle maniac, I was always enamored with how the practice of transcendental meditation changed the trajectory of the Fab Four’s career. John, Paul, George, and Ringo were in Bangor, Wales in August, 1967 attending a seminar in TM held by the Maharishi Mahesh Yogi when their manager, Brian Epstein, suddenly died. Seeing how they handled his death with calmness was a bit shocking to Western sensibilities about grief. Those seminars and their extended trip to India the following spring to study under the Maharishi set them on lifelong paths of meditation (and vegetarianism). Ringo Starr just turned 81 and still meditates every single day. So does Paul McCartney.

My first personal experience with meditation was when I was about 12 and taking karate classes. As a child I suffered from intense insomnia, my mind racing with fantasies about dinosaurs and Spiderman. The meditation practice at the end of each karate class promised “astral projection,” but really taught me how to calm my mind and I’ve used it as a tool to get to sleep ever since. (I often focus on images under the sea, so when I started scuba diving in 2016, it was like I manifested my dream world through deep thought.)

This latest chapter was born from intense frustration. I could read all the “self-help” books in the world but my impulses were still getting the better of me. My need to be confrontational likely stems from my early family dynamic. I like to fight. Me vs. You. I could be a road rager, given the right traffic jam. Often in my marriage, while I “know” Andi and I are on the same team, sometimes I act like we are opposing forces. This is especially true in emotional moments. Even if it’s something stupid, like me wondering, “Why do I always have to be the one to wash the dishes?” My emotional self takes over my intellectual self and I say something stupid. There have been a thousand apologies after I get my head back on straight. I do plenty of trainings on implicit bias, but the greater challenge is teaching people to not let those “unthought thoughts” turn into bad behavior.

So, if some of this is hardwired into the subconscious, how can you ever get in front of it?

Starting a daily meditation practice has provided the answer. Just ten minutes each morning. I sit in the backyard, under an apple tree, and pop open a guided meditation video on YouTube. (The ones by Calm are amazing.) The focus is first on the breath, and seeing any incoming thoughts as clouds floating by, there and gone. The cackling crows and planes landing at PDX are just part of the ambient symphony of my environment. The rest of the time is focusing on not being my thoughts. Thoughts and emotions are not real. They don’t have to control me.

Today’s meditation focused on alleviating worry. Occasionally, I’ll get in a sour mood because of something stupid I did in the past, or something I imagine going on in the present or future, and it’s down a little black hole. The meditation focused on how there are three parts of this process. First is the image of the situation, like remembering some micro aggression I committed in the past or some upcoming event I’m not looking forward to. The second part is the emotion that thought brings up and the third is how that emotion impacts the body. The physical response could be the muscles tensing up or (worse) being more impulsive. Mindfulness says if you can witness this process, you can interrupt it before it gets to Step 3.

It was perfect timing to focus on this as just a few days earlier I totally did this spiral. It was Andi’s turn to prepare dinner but she stopped after work to have drinks and do some career planning with a mentor. Based on something that happened to me nearly 25 years ago, my head went somewhere stupid, I got frustrated and angry, and my fingers sent some pretty snarky texts. My subconscious kicked my ass. Again. If I had been more mindful, I would have identified what that emotion was about and it wouldn’t have gotten anywhere near the Send button. Meditation helped me to see that flow-chart so I don’t repeat the mistake.

The great thing about meditation is that you are literally retraining my brain to be more thoughtful. Andi has commented on the dramatic difference in my demeanor. I no longer start stupid fights (that I later have to apologize for) and center her needs as a part of my normal behavior pattern. I see challenging thoughts like leaves floating down a stream and then I hear Bono sing, “Let it go!” It feels like a rebirth. It feels like embracing thankfulness instead of anger.

Meditation has come into the daily practice of Beyoncé, Lady Gaga, and LeBron James, who meditates on the bench in the middle of games. Our active culture has a hard time “doing nothing” for 10 minutes. Before the pandemic, my yoga class would end with 5 minutes of meditation, cutely referred to as corpse pose (Shavasana). There are always a handful of people who bail to spend that 5 minutes on the Stairmaster. They’re really missing out. Filmmaker David Lynch has a foundation that brings meditation into schools and seen mediating students become less violent and more productive. Meditation is being used to treat trauma and improve the quality of inmate lives in prisons.

I had hit a wall in my self work, battling with my subconscious programming. Then I thought, well, if Ringo Starr can mediate 10 minutes a day and be so “peace and love” all the time (and be married to “Bond Girl” Barbara Bach for 40 years), maybe I should give it a try. Starting each day with 10 minutes, quieting my mind and reminding myself that I am not my emotions has transformed the quality of my life in a palpable way. I can only encourage you to start your own practice under your own apple tree. And thank you, Ringo.