Conversations About Death: Confronting End of Life Decisions

August 23, 2023

My brother delayed his cancer treatment for over a year. He was convinced his stomach problems were the work of parasites, the result of living in the Georgia woods. It was anal cancer. So it wasn’t much of a shock to either of us when his Portland oncologist said that his cancer was Stage 4, having metastasized into other parts of his body. Unfortunately, Ron still believes that it is possible to shrink his tumor and cut it out. His entire body is now the tumor.

I’ve been split into multiple roles since bringing my brother back to Oregon. One is to help him get the medical care he needs to fight his cancer. But another is to try to get him to be realistic about the prognosis. The doctors get paid to treat so that’s what they want to do. His doctors want to fight the cancer to the bitter end, and this end is very bitter. Last week his palliative care nurse was finally honest with him. That, at best, he had “several weeks” before the cancer takes him. A hospice social worker told me yesterday that, because Ron is severely underweight, “he will live longer off the chemo than on it.” I write this while he is sitting in the OHSU Knight Cancer Institute receiving his second chemotherapy treatment, knowing this cure may kill him.

I 100% get where my brother is coming from. If someone in the medical field told me, “You’ll be dead by Halloween,” I’d say, “Well, we’ll just see about that!” And then I’d throw my spinach smoothie in their face. Ron wants to fight and that’s a good thing. But it’s also time to talk about the endgame and how going out on his own terms might, just might, be better than barfing up endless chemo treatments, praying for it all to end, on the outside chance that a few more months of misery is worth it. This has to be his choice, but my brother doesn’t have a very good track record for making good choices.

So we’ve begun talking about hospice care. The word “hospice” has a specific connotation for a lot of people. Images of terminally ill elderly people on deathwatch, being pumped full of so many narcotics that they don’t know who they are. Hospice care has evolved greatly over the last few decades and is now all about quality of life, not just managing pain. Ron’s already on Methadone and Oxycodine, so he’s got the narcotics covered. But the chemo is not adding any quality to his life. The poison is stealing it from him. Medicaid in Oregon gives you the choice – chemo or hospice. If you want to bail on the chemo, the state makes sure you are taken care of. But you can’t do both.

So this is my brother’s conundrum, to receive the full care that comes from hospice, he has to give up on the (extremely slim) chance that chemo will “cure” him. He tells me he thinks that chemo will get the tumor (again, the cancer is now in several parts of his body) to a size where his cancer will be “manageable,” and I ask him what manageable means to him. His response is that then he can treat it with good diet and live a long life in a cabin in Tennessee. He then accuses me of wanting to “kill him off” so he won’t be a burden anymore.

In the abstract, conversations about death are hard. In the practical, they are nearly impossible. We believe we will exist, in some form, for as long as time itself exists. But we also want to be here now for as long as possible. I’m not ready to die. Are you? But we all do. All of us. There will even be moments when Donald Trump, LeBron James, and Taylor Swift cease to exist. (I’ve got $100 bucks on Trump, massive coronary, DC courtroom, March 2024.) We’re all just sacks of meat with an expiration date. But when that date starts getting close, I get why people try to renegotiate their deadlines.

I want my brother to choose hospice care. I want him to get off the torture train of chemo. I want to take him to the Oregon coast. (He’s never seen the Pacific Ocean.) I want the next weeks to be spent listening to music and laughing about the stupid stuff we did when we were kids in Stone Mountain. But I come off as the Grim Reaper for suggesting this might be the best choice given the bad hand he’s been dealt. He just wants to fight and I’m glad he’s not ready to give up. Sometimes hope can win over science. It’s his choice, but the clock is ticking.

If you want to help with Ron’s care, we are still taking donations at his GoFundMe. Maybe we’ll get to take him to the Oregon coast.  CLICK HERE

He Ain’t Heavy, He’s My Little Brother

July 7, 2023

My little brother, Ronnie, and I took sibling rivalry to a new level. In fact, I’m quite sure we sent each other to the Emergency Room when we were kids. Our constant fighting must’ve driven our parents crazy. I know it did for me. It was the cause of some desperation, at age 16, when I first thought about throwing myself into a lake and drowning. (To be clear, the lake was a Stone Mountain, Georgia pond that was maybe three feet deep.) As an adult, I stopped talking to him for 17 years after he threatened to kill our mother. He did some time for that one.

Things have changed with my brother.

We started to reconnect in 2012, when I was back in Georgia. We visited some of our old stomping grounds in Stone Mountain and I learned how to talk to him in a non-antagonistic way. Ronnie has had a challenging life and I think our sibling dynamic played a roll. I wasn’t exactly the best big brother. I think Ronnie was the first target of my rolling anger that was the result of my abuse. I relished in the fight as that was my standard mode. When I could have been protective and nurturing, I was combative and cruel. So the reconnect was a chance for repair, especially when my bother fell into homelessness.

For the last few years, my brother has lived in the woods in Cartersville, Georgia, north of Atlanta. Cozy and I had lunch with him and my father in 2021 at the IHOP near his camp and he was skin and bones. We didn’t know it at the time, but he had cancer. We didn’t talk for 17 years, but we talk pretty much every day now, unless he can’t make it down to Kroger to charge his phone.

Trying to find Ronnie adequate cancer care in a backwards red state like Georgia has been next to impossible. Dissertations have been written on how the Republican Party has conned poor and working people to vote against their interests to pad the pockets of elites, but suffice it to say, being sick and poor in Georgia is a death sentence.

So I’m bringing my brother to Oregon.

The assumption in Georgia is that every poor person who claims to be sick is only after OxyContin, so the insane amount of bureaucratic bullshit that is required to even see a doctor guarantees poor and homeless people are cut out of the health care system. Ronnie’s cancer doctor was 46 miles away at Emory University and he was routinely too sick to even organize a ride to the city. Tired of missed appointments, they dropped him from their patient roll, a cost cutting measure that shortened my brother’s life expectancy. Social scientists know we can predict your life span by the zip code you live in and the death gap for Cartersville, Georgia is as wide as the Tallulah Gorge.

Oregon, on the other hand, expanded Medicaid under Obamacare, making sure low income people have first rate health and dental coverage. It took a matter of minutes to get Ronnie signed up to the Oregon Health Plan and get him space in a residential facility and an oncologist to start his cancer treatment. My mother was dumbfounded by how easy it was to get my brother the services he desperately needed. “Well, I live in a blue state, Mom,” I told her. Now I just have to get him here.

Early tomorrow morning, I’m catching a flight to Atlanta (paid for my father) to collect my little brother. The nature of his cancer is among the ugliest, anal cancer. He hasn’t been able to access the health supplies he needs so he’s often sleeping in his own waste. I’ve been Amazoning him colostomy bags, but he needs so much more, including diapers and clean clothes.  Getting him in shape to fly back across the country is going to take some work. He’s in great pain, without access to any sensible pain medicine, often sure he’s not going to live through the night. I assure him Oregon also has legal weed to help him through those nights. I would bring a bag of THC gummies with me from the corner pot shop, but in Georgia that would get you a one way trip to prison. (The penalty for possessing less than one ounce of marijuana is up to one year in prison and up to a $1,000 fine.) Did I mention that Georgia sucks?

These may be his last days or the wonderful care given to low income people in Oregon may extend his life considerably. Anything is better than being poor and sick in the South. I’m banking on him being alive when I get to Cartersville and being in good enough shape to get on the plane. I’m looking forward to our cross country trip and getting to know the guy I didn’t have time for when I was a kid.

The Day I Found Out I Didn’t Have Cancer

June 8, 2023

I seem to be surrounded by cancer. My dad is in chemo therapy this week to treat his recurring bladder cancer. We’re trying to get my brother to Oregon to treat his anal cancer. (He lives in a red state where they just let poor people die.) My aunt died of breast cancer. My grandfather died of prostate cancer. The news is filled with news stories of 90210’s Shannen Doherty’s breast cancer spreading to her brain (making me feel guilty for all the “I hate Brenda”: stuff in the early 1990s). It’s everywhere.

For the past week I have been convinced I was joining their ranks.

After a routine blood test revealed extremely elevated PSA (prostate-specific antigen) levels, I high-tailed it to the urologist. Her finger up my butt informed her (and me) that there was an elevated risk of prostate cancer. I tried not to panic. She asked me if I was peeing more often and I said no. Then suddenly I noticed I was peeing more often. I was convinced I was the walking dead. In my line of work, I’m often tasked to map out worst case scenarios (like Trump trolls trying to overthrow the government), so I began to doom scroll myself down the back hole of oblivion.

I immediately made an appoint for the biopsy. One should not wait on these matters. “Maybe it was just something I ate, errrrrrgh…” The date wasn’t until July, so I had weeks to freak myself out. Andi wisely urged me to get on the phone and demand an earlier appointment to get my ass poked. She’s generally right about everything so I moved up the date to the following Monday. Then she headed off to Lake Tahoe to do a fundraising bike ride for leukemia research.

My date with the anal probe was this past Monday (June 5). It wasn’t fun but it wasn’t horrible. I had to take an enema while I got Cozy ready for school. “Dad, I need to brush my teeth!” “Just a minute, honey, I’m crapping my brains out.” Everyone at the doctor’s office was cool. In sociology we call it, “studied nonobservance.” No cracks about buttholes allowed. I joked with the nurse that she probably sees a lot of ass. “All day long,” she dryly replied. The doctor came in, turned me on my side and went to work. The inserted probe took 12 samples from the many splendored parts of my prostate. After that, she informed me that I can expect to pee, poop, and ejaculate blood for the next week. Jesus. The appointment to return for the results was June 23. I figured I’d be dead by then.

I didn’t want Cozy to know what was going on because who wants your kid to worry, but I did mention that I had a “procedure” done that might have some side effects. She was home from school and I came out of the bathroom looking white as a sheet. “What’s wrong, Dad?” “Because of that procedure, I’m peeing blood,” I said, feeling weak in the knees. “Oh, so you’re on your period,” she said. I might be OK.

Over the next few days I dipped deeper in the doom pool. The blood, the family history, the twice as high PSA numbers. There was no way I was getting out of this alive. The anger brewed. The world is unfair! Wah! “They say these things come in threes; cancer, divorce, and a likely IRS audit.” I stopped sleeping and got bitchy toward Andi, even though she was only supportive. Wednesday morning in the dentist chair, while getting my teeth x-rayed, I burst into tears realizing how scared I was at the prospect of the Big C. Andi encouraged me to get my results meeting moved up. Right again.

My therapist also helped me to better communicate my fears with Andi and it worked. I apologized for turning my anxiety into resentment towards her and she assured me she would be with me every step of the way, no matter what the verdict. Later, I had a drink with a friend who works at OHSU, known for their cutting edge cancer research, and she offered to plug me into the best resources available. I started to feel like I wasn’t alone.

This morning I got a call from the doctor’s office. Not the doctor but her scheduler who called because (at Andi’s urging) I had been calling asking for the results. No cancer. No cancer. No cancer. All that weight lifted. I ran to tell Andi and apologized for being so stupid. She held me closely and said, “I told you that you were going to be OK.” Like I said, she’s always right. I can’t say what this feeling is like, this sudden clarity. I know the hell that my father and brother are going through. I don’t have to go there now, so I can keep my focus on them and my Portland family. I don’t want the, “me, me, me” anymore. The cascade of misery is, for now, not racing towards me.

I’m not sure what the lesson is here, other than live in a blue state with broad health care coverage. I feel like I’ve been given a second chance. I want to not waste time on anger. I want to people I love and the people I don’t to be happy and live with ease. I want to eat tomatoes and other healthy foods. I want to drink green tea and meditate in the sun and rain. I want to focus on the positive energy that is there for us to tap into whenever we need it, and I need it.

June 8, 2023 will be one of those days. After I got my news, the stories about the death of Christian hate monger Pat Robertson and the federal indictment of Donald Trump hit the national news stream. Suddenly, it seemed like I had a door open to hope and light in the world. I can weather peeing blood for a few more days. Today is yet one more reminder to live, not in the past or the future, but the vivid present. And let’s support our friends and family who are on their cancer journeys.

Talking to My 7-year-old Daughter About Abortion

June 25, 2022

I got a text yesterday morning to turn on the TV. I was worried that someone famous I loved had died or there was another 9/11 unfolding. It was much worse than that. The health and safety of girls and women of child-bearing age was being thrown under the bus by five people, Clarence Thomas, Samual Alito, Neil Gorsuch, Brett Kananaugh, and Amy Coney Barratt. Remember their names. They pulled the lever to turn the United States into Afghanistan.

Going against the will of a vast majority of Americans and 50 years of precedent, Roe v. Wade was overturned on a Friday morning in June. The Supreme Court’s decision doesn’t end abortion (despite the spontaneous celebrations of tools like Marjorie Taylor Green), it just returns the practice to the back alleys of Mississippi and Missouri. And girls and women will die. But, apparently, America cares more about guns than girls and women.

The Friday morning news woke up my seven-year-old daughter, Cozy, who now, as a female, had fewer rights than she did the day before. She wondered what all the yelling on TV was about. Seven-year-olds should not know about abortion. That information should be reserved for 11-year-olds who are raped by a family member. I didn’t know how to answer her. How do I explain this to a child? Of course, she’s heard the word “abortion” and she’s gonna hear it a lot now thanks to the conservative super-majority on the Supreme Court.

Knowing that that word was going to be everywhere and that I would be dragging her along to a reproductive rights rally in downtown Portland later in the day, I decided to have “the talk” with her. Sort of like how black parents have to talk to their kids about how to the police might kill them if they don’t understand how racism works, millions of parents now have to talk to their daughters about how the state might kill them because of how patriarchy works.

So yesterday afternoon, after she came in from playing in a neighbor’s new tree fort, I sat her down on the couch for America’s new family tradition. The word is now everywhere. She’s an inquisitive child, so I knew she had questions.

Me: Hey, Cozy can we talk a minute? (She gets a worried face, like she was in trouble.) No, it’s not a bad thing. Well, it is a bad thing for society, not for you at the moment. I just want to talk about something that’s been in the news. Have you heard the word, “abortion.”

Cozy: Yes (She got uncomfortable, feeling like we were going to talk about sex.)

Me: Do you know what it means?

Cozy: No

Me: I know you’re hearing that word a lot right now and I just want to explain it to you. So when Mommy and I first got together, we really wanted to have a baby one day. And the day Mom found out she was pregnant with you was one of the happiest days of our lives. We were so excited. But sometimes women get pregnant and they are not happy about it. Maybe they’re too young, or they already have a lot of kids, or having a baby might be really bad for their health. So there this little operation called an abortion that lets women decide if they want a baby or not. Women have had the right to make that decision for 50 years. But this morning some judges picked by Donald Trump decided women no longer have that right.

Most Americans believe that women should have this right but some people think abortion is bad because it stops a baby from being born, so there is a lot of fighting about it and people get really angry on both sides. You really don’t have to worry about it now but let’s say 20 years from now you want to be able to decide whether or not you want to have a baby, you will want to have the right to make that choice.

Cozy: How long until the law changes back?

Me: I don’t know, sweetheart. That’s why we have to vote, and march, and fight for you and Mom’s rights. So we’re going to a demonstration downtown later today to protest the decision these judges made. Just imagine if judges said we can have slavery again, how much that would hurt some of your friends.

Cozy: Yeah, that would be really bad.

Me: We have to protest so we can get your rights back. Hopefully it won’t take long. You’ll see a lot of angry people today. I’m angry. Your mother is angry. You might even hear some bad words because everyone is so angry. But you can ask me anything you want about it. You know how much I love your questions. Do you have any questions?

Cozy: Yeah, can I go back outside and play?

And she did. I know it was a lot to lay on a kid, but the Supreme Court and the Trump cult has foisted this upon our families. I shouldn’t have to talk to her about these things.

Later, we headed downtown to the rally. I told her if it got crazy we would leave. Black clad anarchists have a tendency to hijack demonstrations for their own narcissistic reasons and start fires in the middle of the street. (Haven’t they heard about the CO2 problem?) She was a little uneasy walking into the large crowd, but she’s a veteran of marches, rallies, and protests. So she settled in to the cacophony. She only had one question.

Cozy: Daddy, what’s the deal with the coat hangers?

Me: Can I answer that one later?

We were joined about about 1500 other Portlanders in a panic over the rollback of rights. At the moment, women and girls in Oregon are safe, but we could easily have a Republican governor (a horrid anti-choice woman named Christine Drazen) elected in November and be as bad off as Mississippi. Democratic Socialists at the rally told the crowd to vote for them and not Democrats, which is exactly what the anti-abortion Republicans are hoping for. I just let all the chants and speeches wash over my daughter and I. I wanted her to be able to say she was there.

After about an hour, Cozy asked if we could leave. It seemed like a good time as I saw the teenage anarchists in their black uniforms start to circle the diverse crowd like hungry sharks. Often, I’m right there with them, sharing in the rage against the backward slide. But today I wanted my daughter to still believe in non-violence and the democratic process. I wanted her to believe in Gandhi, Martin Luther King, Jr., and Margaret Sanger. It’s too soon for me to teach her about the politics of desperation or how enemies send agent provocateurs into demonstrations to start fires in the street to make demonstrators look bad on Fox News.

But, apparently. It’s not too soon to talk to a seven-year-old about abortion.

Note: They (anarchists, agent provocateurs, Fox News producers, whoever) did start a fire in the middle of the street last night. But don’t be surprised if the next fire is women burning down the Supreme Court building.

I’m Vaccinated! Am I proud or am I ashamed of it?

March 24, 2021

I got vaccinated about a week ago and I don’t know if I should shout if from the rooftops or keep it on the down low. Never has getting a shot more been more fraught with social complexity. As of today, 127 million Americans have received at least one dose of a COVID-19 vaccine and about 14% of all Americans are now fully vaccinated. Is everyone who is vaxed as vexed as I am about how to respond? Let’s weigh this out.

On the one side, after a year of living in fear, according to the scientists, I am fully protected from the coronavirus and, apparently, the more infectious variants.

On the other side, those scientists can’t tell me if I can still pass COVID on to others.

On the one side, the more people who are vaccinated, the fewer hosts the virus has, slowing the pandemic down to something that starts to look like the mythical herd immunity.

On the other side, it’s really clear that the social inequities that marked higher infection and death rates for some populations are all reflected in who has access to the vaccine. My white privilege pays off in white life expectancy.

On the one side, I can stand as defender of science and encourage other intelligent people to get their shots as soon as possible.

On the other side, I’m aware there are a large number of idiots, including at least 50% of Trump voters, who said they won’t get the vaccine because they think COVID is a hoax. And those un-immunized idiots will birth mutant variants and put immunocompromised people (2.7% of Americans) at risk of infection and death.  (Dear idiots, Trump has been vaccinated and has said you should be, too.)

On one side, I don’t have to panic if I actually use a pen from the “dirty pen” holder when I’m signing the check at the coffee shop.

On the other side, these vaccines came out awfully fast. As a scientist, I’m bothered when corners are cut. And am I going to need another booster shot in a year? And when can my kid get vaccinated? And any info about long-term side effects? And…

I got the Johnson & Johnson vaccine on sunny Saturday afternoon at the Portland Airport Economy Parking Lot. It was an impressive set up, like driving into Disneyland, with hundreds of volunteers donating their time to help put a dent in this pandemic that has killed nearly 3 million people on the planet (most here in the dirty USA). My first thought was about how people who didn’t have cars were going to get their shot in this very car-centric vaccination effort. (I didn’t even have to get out of the RAV-4.) Actually, my first thought was how lucky I was to get a spot so soon. K-12 educators are just getting vaccinated now. I think college educators like me are scheduled later, somewhere between Jiffly Lube workers and TikTok dancers.

A friend in the military had a vaccine opening and was already full of Moderna, so he offered it to me. I passed up on one of these “jump the queue” openings a month ago because I knew there were more deserving recipients. But, after hearing Dr. Anthony Fauci say, “If you have a chance to get a shot, get the shot,” I decided to play my educator-parent of a young child-I’m probably older than you and therefore at risk-card. This decision was made easier by the fact that there are reports that large numbers of vaccines have gone unused because of a disjoint in the demand and supply chain.

But it’s been clear that there is massive inequities in this vaccine rollout. African-Americans, who make up 12% of the U.S. population, are only 8% of those who have received a vaccine, according to the CDC. Since most vaccine scheduling is done online, the technological divide is hitting the offline hard. This includes the elderly, poor people, people with physical and mental disabilities, the unhoused, and those that live in rural areas with limited internet access. Those low vaccination rates will translate into higher infection and death rates.

I thought about this as I was on the wild ride of my “one and done” Johnson & Johnson poke. Eight hours after my shot, I was hit by the Corona Express, a quick trip into the “this what you get” black hole of side effects. I had the chills so bad I thought the teeth were going to bounce out my head. It all passed later the following day, and I felt ten feet tall and bulletproof. I had a great support system to hold my hand. The rumors of heavy side effects might make some folks who live a lone a little more vaccine hesitant. I know I was lucky, but it didn’t feel like it while I was sweating bullets.

I lecture a lot about privilege and how privilege should engage a sense of responsibility, not guilt. But there is a part of me that feels guilty that I got the vaccine when I know there are more deserving people who don’t have a friend who can put them on the immunization guest list. But maybe my shame should be reserved for the system that creates so many institutional injustices that play out in human suffering. It’s not an exaggeration to say that, in America, the best predictor of your life expectancy is the zip code you live in. I’m ashamed of that.

Ultimately, we’re all taking it on faith that the mass vaccination experiment will solve this new health problem. It’s already done a good job of adding to an old one.

Protecting Our Children from the Trump Virus

March 24, 2020

I’m not sure what day of the self-quarantine this is. I know it’s the second day of Oregon’s “shelter in place” order but the streets of Portland have been increasingly empty for over the last ten days, since the governor ordered all the schools closed a week before spring break, dropping thousands of kids in the laps of trying-not-to-panic parents. We don’t know what’s happening. I wonder if they do.

Our Cozy, at 5 and a half, is pretty smart. She rides around the car with me, secretly listening to NPR (I thought she was staring out the window, thinking about unicorns). Like most, I’ve been a little too addicted to the news about the advancing Trump virus. “Hey, Coze, where do you think this coronavirus came from?” I asked, trying to gage her comprehension of the global slowdown.

“It’s from sick bats in China,” she calmly said. I was expecting some kindergarten-level theory about it coming from flying monkeys hiding inside rain clouds. She’s probably been checking the infection rates on the Johns Hopkins website.

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But the reality of the impending sense of doom as the Trump virus shuts down the world she knows lurks like a monster in the closet. Our spring break tradition includes a trip to the super weird and wonderful Enchanted Forest amusement park, south of Salem. Closed due to the virus. We had planned a trip to Joesph, Oregon to hike around the eastern part of the state. Prohibited. Play dates, ice cream shops, jungle gyms, The Old Spaghetti Factory, all her favorite things are off limits for now and we don’t know when they won’t be. She doesn’t care about the stock market, but the fact that she can’t hug her friends is a red flag that things have changed drastically.

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This might be every parents secondary concern right now (the first being how to protect their children from contracting the Trump virus). How do we keep the kids from being infected with our generalized anxiety? Things are about to get even worse, but I don’t want my small child to know. She’s got washing her hands to “Happy Birthday” twice down pat, but does she realize that she’s not returning to her kindergarten class? The next time she goes to school she will be a first grader (God, please) and everything will be different. I keep thinking of that 1997 movie, Life is Beautiful, where Roberto Benigni and his young son are in a Nazi concentration camp and he convinces his son that they are actually in an exciting game to keep him from being completely traumatized. Dad is murdered by the Nazis in the end.

I’ll be honest, this Dad has been struggling. The Trump virus has upended the economic stability I started to find in 2019. It’s put my 70-something parents at risk. I’ve got an old friend in the ICU in an Atlanta hospital with a COVID-19 infection, and the dumbass Spring Breakers at the beach are not exactly flattening the curve. I feel like I’m inside a Joy Division album. Cozy is frustrated that Dad spends so much time watching the news or checking in on line. What to do, as we slide deeper into the social distance?

As usual, my bad ass wife snapped me out of the funk. She reminded me of all the positive things that are happening in this moment, most importantly all the wonderful family time that we’ve been gifted that will have a huge impact on our daughter. We’ve gotten to be homeschoolers, play dates, and creative time passers. (Andi has already given Cozy a haircut, two (henna) cat tattoos, and lots of weekday attention.) We’re planning some family art projects and Cozy and I are committed to learning how to play chess before this thing is over. We’re also catching up on Disney movies (Thank you, Disney+ for releasing Frozen 2 three months early!) And we’ve got a daily calisthenics routine we do on the sidewalk, to the delight out our neighbors.

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I’ve been running daily (now that the gym is closed) and reconnecting with the music of my youth. (You can run really hard to Van Halen). In the process, I’ve noticed neighbors and strangers seem more friendly, waving from their bubbles. The explosion of live music coming in from my social media platforms has put me in the room with some of my favorite performers, including Patti Smith, Michelle Malone, and Ben Gibbard (every day at 4 pm!). Something is happening. It’s like a government imposed artist retreat (as Patti called it) that’s also producing some much needed civility. The Trump virus is the great equalizer, but beautiful things may emerge from it. Andi and I have even started on a screenplay project!

She was quick to remind that when all this is over, people might slip back to their 9 to 5 grooves, complaining about how they don’t have any time to do the things that they really want to do. As a sociologist, I’m hoping this is a paradigm shift. That once we taste this new version of our lives, we won’t want to go back to the rut. We’ll create a new synthesis, transformed by the quarantine into a new global community.

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So this is what we must share out with our children, that out of crisis comes opportunity. Not to make a fast buck, like those looking for a corporate bailout from the Trump virus aid package. The opportunity to create new things, that connect us in new and beautiful ways. Cozy wants to write postcards! The social organism is adapting. We might look on this moment in history like how we look at how the Black Plague in 1340s Italy paved the way for the Renaissance, as Europeans embraced a lust for life instead of endlessly pondering the afterlife. Let the Trump virus unleash our lust for life and let our children know all the beautiful things that are coming.

Let us come out of this a new version of us, connected and complete. And let the optimism of our children be our guide.

Love In The Time of Corona

March 15, 2020

IT WAS INEVITABLE: Society was due for a course correction. We’d settled into our accepted state of idiocracy, whining about our moron leaders while sipping our over-priced coffee drinks. Their delusions of nationalism were destined to bite all of us on the ass. Brexit, “America First,” Polish nationalism, and all the rest. Build a wall and crime will fall, they said. They were too stupid to know that germs don’t recognize man-made boundaries.

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In less than two weeks the fantasy of “national borders” was laid to waste by the creeping, then accelerating, coronavirus. We are the world, sneezing and coughing together, engaged in a collective fear that our inherent sociability is killing off our elders, one nursing home at a time. Our anti-science president thought he could employ his jingoism by placing his executive power in front of this “foreign virus” (his words). COVID-19 laughed at his hubris. It was already here, spreading like a kerosene fire.

So here we are, in lockdown, trying to “flatten the curve,” riding out the pandemic in our under-stocked bunkers, socially distancing ourselves from our neighbors. Thank the gods for Netflix and chilling. (We now know what will come after Gen Z, the Coronials. See ya in 9 months, babies!) What does this mean for our society, as food servers run out of grocery money and Trump thinks of another way to help his rich friends, again? (“Fed to pump in more than $1 trillion in dramatic ramping up of market intervention amid coronavirus meltdown”) It seems like once they closed down Disneyland, we were racing to a complete social collapse. At least my gym is still open, for now.

In times like this, people crave togetherness, something more than posting memes about empty toilet paper shelves at Costco. Older readers will remember how after 9/11 there was a strange sense of unity that fell over the country. We were all bonded by our grief and needed to be together, hugging strangers and lending handkerchiefs to wipe away others’ tears. Ah, those were the days. How can we accomplish this same cathartic social ritual with three feet between us at all times? I want to hug my elderly neighbors who are already “socially distanced,” but will that kill them?

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Our founding sociologist, Emile Durkheim, asked, over a hundred years ago, why we need religion. In a time of growing scientific explanation, it seemed like religion was less and less required to make sense of the world and yet people were still flocking to churches, synagogues, and mosques. What he found made a lot of sense. People’s need for religion didn’t have anything to do with needing “God,” but needing each other. We needed a sense of community, from the Amish to Zoroastrians. We needed to be in one place together, breaking bread and engaging in rituals that gave us a sense we were connecting the sacred mysteries and the profane reality.  Religion gave us the social cohesion needed grease the wheels of a functioning society. As a kid who grew up in the Bible Belt, you never asked where someone was on Sunday mornings. They were at church, with their friends.

In the twenty-first century, social media has given us much of that sense of community we used to find at our various worship services, but it’s still not the same. Even with online shopping, online dating, and online education, there is still an innate desire to be in a room together. Maybe it is tied to our tribal origins, the rule by consensus. Checking in with each other by taking stock of body languages. “Yeah, I get the feeling people don’t want to go the Chili’s after work.” We need to be reminded of the flesh and bones of us, that we are not a series of illuminated screens.

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So how will we get through this? My intellectual mind understands that limiting social contact will slow down the spread of the virus and put this thing in the dumpster with the swine flu, the bird flu, and various monkey-born illnesses. But my emotional mind wants to take my family out for dim sum to support our suffering Asian community and later grab a drink at my local bar in hopes a few shots of whiskey will immunize me. (Guilty of doing both this week.) Facebooking and ordering delivery just doesn’t cut it. Will my very human need to be in the world (and putting my money where my asymptomatic mouth is) extend this nightmare and maybe take out a few humans in the process? How can I be the needed citizen of the world and also stem the economic collapse in my little part of the world?

Durkheim believed that even horrible things can be functional for society. Maybe COVID-19 is functional as a great reset for the human race, to remind us that borders and nations are luxuries that quickly fade when we realize we’re all in this germ factory together. I’m wrapping my arms around the world. And then washing my hands.

The Monsters Under the Bed

July 7, 2017

I’m learning all about the many stages of child development. For example, Cozy suddenly doesn’t want to stop wearing diapers. I figured she’s be ready to move to the next big thing, undies! It’s her connection to her safe dependency on her parents, perhaps; a security blanket she can pee on. I mean, once you start wearing underpants, what’s next? A 9 to 5 job? Days spent deleting spam emails and right-wing family members? Awkward conversations with canvassers on the front porch?

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We’re now in the monster stage. The monsters have arrived in our home. There’s a monster in her bedroom or, just one in the closet. She doesn’t want to sleep in her room or go downstairs and help me with the laundry. “There’s a monster down there!” I’m not sure where it comes from. Oh, yeah, I do. Scooby Doo, and Frozen and everything else that’s “kid friendly.”  She won’t even open Where the Wild Things Are yet.

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I know there are twisted parents that won’t think twice about exposing their kids to the most horrible images. (“C’mere baby. We’re gonna watch Aliens. It’ll be good for ya.”) I’m still suffering from watching Dark Shadows with my mom as a toddler. In 1999, I ran into a couple with their small child at a theater buying tickets to 8mm, the Nicolas Cage movie about snuff films. They were in line in front of me and I knelt down to the kid’s level and said, “Little girl, your parents are seriously fucked up people.” The mother looked like she was going to get another beating as dad glared at me. I should track that little girl down, probably in Coffee Creek Women’s Correctional Facility.

The point is, we’ve been trying to shield Cozy from the basic fact that there are truly monsters in the world. If only they were as manageable as Sasquatch or Marshmallow the Snow Giant. I don’t want her to know that there are people who would snatch her off a playground or murder her parents for a little bit of money. I’m old enough to remember stories of garment manufactures who cut corners on flame retardant pajamas, soaking them with chemicals that mutated kids’ DNA. (Explaining why they keep making X-Men movies.) Those creeps were monsters.

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In the most recent episode of my podcast, Recovering Asshole, I was talking to feminist educator Jen Moore about male privilege. There are so many monsters that I, as a male, can ignore. We discussed that, at some point, my wife and I will have to explain to our daughter that there are boys and men who will try to rape her and those monsters might appear to her as friends. And that’s just the tip of the iceberg of potential threats. Add drunk drivers and politicians that want to take away your health care (some of whom are surely drunk themselves) and more. When I was a kid, I thought the city-stomping line-up in 1968 Japanese film, Destroy All Monsters, was the worst possible thing humanity could face. And then Donald Trump pulled us out of the Paris Climate Accord.

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I was listening to a story on NPR about the horrific Grenfell Tower fire in London in which they are still counting the dead. The building designers seemed to forget sprinklers and adequate fire exits, but it was low income housing so why bother. There was a witness account of a woman who wrapped a baby in blankets and dropped the baby from a 9th story window. I had to pull over the car I was so consumed with sadness. I thought of the World Trade Center jumpers on 9/11 whose last choice was one form of death over another. Then I thought of a mother choosing to say goodbye to her little baby before she perished in flames, hoping that at least her child would survive. I thought the people responsible for those deaths are the real monsters under our beds.

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Cozy has taken to playing “Monster” this week. “Daddy, you be a monster and I’ll be a princess.” Or the more fun version, “Daddy, I’ll be a monster and you be a princess.” This monster prefers tickling to abduction or regulation violations. I think it’s her way of having some power over the feeling that something evil is lurking just out of view. When she was born I believed I could protect her from it, but now I know I can’t. Not truly. But let’s pretend, just a little longer.

Postscript: About 1 a.m. this morning, Andrea and I were still up. (I had a late-night job talk with someone in Ethiopia.) Cozy came in, sleepily carrying her Minnie Mouse doll, Pink (her favorite blanket), a Frozen kickball, and a green mylar balloon on a string. We were laughing so hard, we let her climb in bed with us. No monsters here.

 

Preparing for the Great Leap Backwards: We call it “anomie”

Jan. 4, 2017

There was a wonderful moment of peace in our house on New Year’s Day. Andrea and I were sitting on the couch reading. I was reading Lidia Yuknavitch’s memoir, The Chronology of Water. My wife was reading Patti Smith’s first memoir, Just Kids, and Cozy was sitting in my old bean bag chair, reading Go, Train, Go! It’s one of a series of memoirs by Thomas the Tank Engine. The Best of Donny Hathaway was playing on the hi-fi, the coffee was brewed, and it was almost snowing outside. I took it all in, my beautiful family, and thought, “Can the rest of 2017 please just be like this.”

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But I know it’s not to be. This particular set of 365 days does not promise to be easy. After the rough start to 2016, I don’t doubt that some of the icons of our childhoods, those increasingly fragile baby boomers and older, will pass away and I’ll have to stop to pay tribute, dusting off their records, renting their movies, and maybe writing mournful odes. Stay with us, Chuck Berry. Don’t leave us, Betty Friedan. We still need you in this world. And there will be younger ones, even younger than me. “I just bought his new album! I just read her new book!” These passings will remind me that my parents are getting older and face their own health challenges that will inevitably put my own loyalty as their child to the test. Stay with us. Let me get back to work so I can help take care of you. I want Cozy to get to know you better.

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The country faces much bigger challenges than I do when Trump takes his “oath” on January 20th. (Look for crossed fingers behind his back.) When he and “his” congress repeal Obamacare, millions of the “angry white people” who voted for him will lose their health coverage. The record low uninsured rate will zoom back up and the first contact with a doctor these angry white people will “choose” will be an Emergency Room. And tax-payers will again get stuck with the bill. That looks more like socialism than Obama’s Affordable Care Act. Personal bankruptcies will sky-rocket as medical bills wipe out any savings or home equity these angry white people have. I hope that iron worker in Michigan has got a few hundred thousand dollars under his mattress for his kid’s first few leukemia treatments! But at least the Trump did what he said he was gonna do. I like a guy who says what he means. Now about that wall.

These folks are likely to see all kinds of bad news from the guy who modeled himself as their savior. Prices going up from his simple-minded protectionist trade policies as wages go down because of a new war on benefits, unions, and the minimum wage. “Competition” is great for the fat cats at the top and he knows this. The defunding of public schools will turn these kids to the streets. But hey, you might get a voucher! No worries, because the promise to renew the war on crime and drugs will give them three hots and a cot at the new private prison, all paid for, not by the rich, but you got it. You.

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I’m not sure how the cavalcade of changes that is coming from the arrival of the most incompetent plutocrat to ever golden parachute into Washington will affect me. I am just beginning my return back to work now that Cozy can successfully distinguish Plah-Doh from actual food. It could be great as the sane segment of the population was looking for experts in diversity, criminality, and what to do when a new generation of young, angry white people start spray-painting swastikas around town. Or it could be the exact opposite as the walls go up and Americans, fearful of the coming crash, just put all their money in Canadian dollars and wheels of parmesan cheese. Diversify! That’s me with a sign down on SW Broadway. “Will lecture about Late Capitalism for contributions to my minimum credit are payment.”

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Our first sociologist was a little French fellow named Emile Durkheim. The guy was supposed to become a rabbi but invented a scientific discipline instead. I’ll write more about him because his ideas are fused into my veins. He was, in many ways, inherently conservative, alerting the enlightened to the unintended consequences of the French Revolution. Revolutionary change itself is not bad, but when things happen too quickly and people start throwing the baby out with the bathwater, you’re gonna get some ugly version of anarchy. In 1789 France, it was the abolition of any institution associated with the monarchy. In 2017 America it may be the abolition of any program associated with that black guy. What was his name again? The result in France was the “reign of terror” and the invention of a political tool called the guillotine. What will be the equivalent in the reign of Trump?

Durkheim had a term for this – anomie, the sense of normlessness. When things change too quickly and institutions loose their ability to keep things relatively stable, people freak out. For Durkheim, it was high suicide rates associated with industrialization and the sweeping away of the old regime. Usually, we are happy when the old order goes bye bye. Slavery was a long tradition. So was legal sexual harassment and the unpunished murders of transgender people. As sociologists, we are often discussing anomie associated with change that moves society forward. How have men handled (or not handled) that radical idea that women are human beings invested in right to equal opportunity? Some dudes freaked out.

Get ready for the anomie of a society that suddenly lurches backwards, to AGAIN when AMERICA was GREAT. To a time when women, people of color, LGBTQ people, working people, and yes, a lot of angry white people regularly got screwed and were told to sit down and shut up or the goons would come for them in the night. How will America manage this rapid change to the good old boy days when generals and millionaire (now billionaire) men made the rules? Will we descend into chaos as our basic institutions are attacked by this con artist? He and his Legion of Doom represent the greatest threat to the idea of America we may have ever faced from within.

Hey, maybe I’ve got this all wrong. Maybe nothing will really change after January 20th. That Trump will be our great entertainer and solve all our complex problems with a tweet. His seemingly pathological lies could be a brilliant secret plan to get Wall Street to hand back America’s wealth to Main Street. Or maybe Washington will be crippled with same deadlock as always and any change will be small and unnoticeable to anyone who doesn’t read wonky blogs. But honestly, I don’t think Donald could name the first ten amendments of the Constitution, let alone FDR’s Four Freedoms. The question is will the angry white people who voted for him see the con before the midterm elections in 2018? I imagine even his KKK supporters are gonna feel a bit like suckers by summer.

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Look, I just want enough “freedom from want” to be able to keep my house and sit on my couch with my family on cold winter’s days, reading memoirs, and not worry about guillotines for “libtards” and college professors. And know that Chuck Berry is still in the world.