Danger, Will Robinson! Anticipating a Next Wave of Political Violence

My Lizard Brain Made Me Do It: Why We Do Stupid Things

Not Woke:  Mauritania, where slavery exists and gay people get the death penalty

Jacksonville is America and America is Sick: Can We Cure White Supremacist Violence?

Conversations About Death: Confronting End of Life Decisions

August 23, 2023

My brother delayed his cancer treatment for over a year. He was convinced his stomach problems were the work of parasites, the result of living in the Georgia woods. It was anal cancer. So it wasn’t much of a shock to either of us when his Portland oncologist said that his cancer was Stage 4, having metastasized into other parts of his body. Unfortunately, Ron still believes that it is possible to shrink his tumor and cut it out. His entire body is now the tumor.

I’ve been split into multiple roles since bringing my brother back to Oregon. One is to help him get the medical care he needs to fight his cancer. But another is to try to get him to be realistic about the prognosis. The doctors get paid to treat so that’s what they want to do. His doctors want to fight the cancer to the bitter end, and this end is very bitter. Last week his palliative care nurse was finally honest with him. That, at best, he had “several weeks” before the cancer takes him. A hospice social worker told me yesterday that, because Ron is severely underweight, “he will live longer off the chemo than on it.” I write this while he is sitting in the OHSU Knight Cancer Institute receiving his second chemotherapy treatment, knowing this cure may kill him.

I 100% get where my brother is coming from. If someone in the medical field told me, “You’ll be dead by Halloween,” I’d say, “Well, we’ll just see about that!” And then I’d throw my spinach smoothie in their face. Ron wants to fight and that’s a good thing. But it’s also time to talk about the endgame and how going out on his own terms might, just might, be better than barfing up endless chemo treatments, praying for it all to end, on the outside chance that a few more months of misery is worth it. This has to be his choice, but my brother doesn’t have a very good track record for making good choices.

So we’ve begun talking about hospice care. The word “hospice” has a specific connotation for a lot of people. Images of terminally ill elderly people on deathwatch, being pumped full of so many narcotics that they don’t know who they are. Hospice care has evolved greatly over the last few decades and is now all about quality of life, not just managing pain. Ron’s already on Methadone and Oxycodine, so he’s got the narcotics covered. But the chemo is not adding any quality to his life. The poison is stealing it from him. Medicaid in Oregon gives you the choice – chemo or hospice. If you want to bail on the chemo, the state makes sure you are taken care of. But you can’t do both.

So this is my brother’s conundrum, to receive the full care that comes from hospice, he has to give up on the (extremely slim) chance that chemo will “cure” him. He tells me he thinks that chemo will get the tumor (again, the cancer is now in several parts of his body) to a size where his cancer will be “manageable,” and I ask him what manageable means to him. His response is that then he can treat it with good diet and live a long life in a cabin in Tennessee. He then accuses me of wanting to “kill him off” so he won’t be a burden anymore.

In the abstract, conversations about death are hard. In the practical, they are nearly impossible. We believe we will exist, in some form, for as long as time itself exists. But we also want to be here now for as long as possible. I’m not ready to die. Are you? But we all do. All of us. There will even be moments when Donald Trump, LeBron James, and Taylor Swift cease to exist. (I’ve got $100 bucks on Trump, massive coronary, DC courtroom, March 2024.) We’re all just sacks of meat with an expiration date. But when that date starts getting close, I get why people try to renegotiate their deadlines.

I want my brother to choose hospice care. I want him to get off the torture train of chemo. I want to take him to the Oregon coast. (He’s never seen the Pacific Ocean.) I want the next weeks to be spent listening to music and laughing about the stupid stuff we did when we were kids in Stone Mountain. But I come off as the Grim Reaper for suggesting this might be the best choice given the bad hand he’s been dealt. He just wants to fight and I’m glad he’s not ready to give up. Sometimes hope can win over science. It’s his choice, but the clock is ticking.

If you want to help with Ron’s care, we are still taking donations at his GoFundMe. Maybe we’ll get to take him to the Oregon coast.  CLICK HERE

Why Are Conservative Boys So Triggered By Barbie?

The Soul Crushing Death of Sinéad O’Connor, Who I Should Have Helped

From Big Brother to Cancer Care Giver

July 23, 2023

What’s the John Lennon line about how life is what happens when you’re busy making other plans? I had this vision of flying into Georgia (on my father’s dime), rescuing my brother from his shithole hobo camp, and delivering him to a Portland cancer treatment facility, then watching his recovery from a safe distance. It didn’t quite turn out like that. 

When I got to my dad’s after landing in Atlanta, my brother, Ronnie, was on the phone, telling me I had wasted my time and that he wasn’t going to leave his camp in Cartersville, Georgia. I could tell he was afraid of the incredible change he was facing. Instead of suffering from his rectal cancer in a hell he knew, he was looking at relocating in a place far away from the Georgia piedmont. And he had never even been on a plane. I told him I wasn’t going to force him to do anything, I was just headed to come hang out with him for a bit. He’d been held up in a Quality Inn for a few nights because his pain was so great. He was convinced he was on death’s doorstep and just wanted to be left alone. This would have to be his choice.

Finally seeing him after two years was a bit rough. I thought about the last days of Howard Hughes but without the billions. His hotel door was propped up open so the Georgia heat and flies could come in as he lay in the bed. I went into operational mode. Food, coffee, and whatever else he needed. Gradually he realized he would be better off in Portland. He wasn’t ready to die just yet. I got a room next to him and we made plans to strike his camp later in the day.

He had been living on a hill behind the Cartersville IHOP for seven years. How he survived, I’ll never fully understand. Another blistering summer in rapidly evaporating Georgia would have killed him. His camp was a tent, full of spiders, and a year of garbage hidden under tarps, and a dozen gallon jugs of urine that served as his bedpans when he was immobilized by pain. It wasn’t pleasant but that thought that there was something better waiting motivated us to clear the camp and head to Atlanta to catch a flight to the land of Obamacare. 

The journey home was a challenge. Whatever you do, don’t fly Frontier Airlines. It’s the nightmare airlines. Just getting a wheelchair to get Ronnie to the gate at Atlanta Jackson Hartsfield Airport was an ordeal. Then, because of cancelled flights, I had to race him to another gate on another concourse and hope that delayed flight would get us to our connecting flight in Las Vegas. The Las Vegas to Portland flight was cancelled and they told us they could get us on another flight home three days later. I told them he was a cancer patient who had an important oncology appointment the following day and Frontier Airlines ticketing agent just shrugged her shoulders. So we headed to another terminal (Ron still in a wheelchair) and bought a ticket for that night on Spirit Airlines. (I never thought I’d say this, but Frontier makes Spirit look like Delta.) We finally made it to Portland, but Ronnie’s backpack didn’t arrive until six days later, with all his electronic items stolen from the bag. Frontier sucks.

After a day of adjusting to West Coast time, my job driving my brother around began. First to an oncologist in Tualatin, south of Portland, where we found out his cancer was Stage 4. Then to a residential facility I was hoping to move him into, where they told us it would be a few weeks. This was happening the week I was driving Cozy to and from art camp, way out in the traffic hell of Beaverton. Endless calls to Medicaid to get his long term care interview moved up from late August, making CT scan appointments, preparing meals, and administering pain meds every two hours.

Suddenly, I’d become an in home care nurse.

It just seemed really clear that this was the obvious role to step into. What else should I do? My brother is battling anal cancer. He was doing it alone in the Georgia woods, and now he’s doing it on my couch in a state that has legal weed. 

The legal weed bit has blown his mind. It’s been hugely helpful with his pain and appetite (although it wasn’t helpful with the Taylor Swift video I tried to make after we got high and watched Yellow Submarine.) In the conservative state of Georgia, possession of less than an ounce of pot is an automatic year in prison, on the taxpayers’ dime. In the liberal state of Oregon, an ounce of weed just means you’re running low on weed.

Once the pot and narcotic pain meds started to work, Ronnie started to feel human again. He’s got an amazing oncologist at OHSU’s Knight Cancer Center and wonderful palliative care coming. We’re still trying to find housing for him. Going through chemo on my couch is not an option. Keeping him in colostomy bags and diapers with an 8-year-old running around is a less than an ideal setting for him and my family, but he’s, literally, out of the woods. Sitting on our porch in the cool Portland night air (the opposite of Georgia), has allowed us to connect in a way we never did when we were kids. It started to feel like this experience was healing me as much as it was intended to heal him. 

It’s certainly a left turn from my normal summer, teaching on line and working on my side projects, but the support of Cozy, Andi, and Jaime makes it work. Watching Cozy and her uncle bond has been a thrill (Cozy is ferocious on the board games), and Andi has helped me remember how important this effort is. The moments I can escape with Jaime for a bit have kept my battery charged and her concern for my brother just fills my heart. And I’ve been able to show Ronnie some of the joys of my little town, like green tea at the Chinese Garden and way too much sugar at Voodoo Donuts.

Fifty years ago, everything was a constant fight between us. I never would have thought of trying to comfort him. Now my hand is on his back as the doctor tells him that his cancer has spread from his rectum to his lymph nodes and lungs. I don’t put him down for his assertion that he can “shred” his tumor with turmeric and sound waves. I just encourage him to listen to his doctors, who are among the best in America. This isn’t Georgia. Under Oregon’s expanded Medicaid, even the poorest among us have access to be best care.

Part of employing empathy is seeing this through my brother’s eyes. He has to be scarred shitless about this diagnosis, that is close to a death sentence, with a treatment option that will be a true test of his mettle. He’s lived as a hermit in the Georgia woods for ten years and now he’s in the hipster metropolis of Portland (Just the number of people walking around has shocked him. Nobody walks down the street in Cartersville, Georgia.), and, on top of all that, he has to trust a brother that has showed him more hostility than love in his life. I can’t imagine what’s going on in his brain. Thank God (Oregon voters) for legal weed.

Ronnie has been incredibly appreciative and acknowledges turning my living room into a cancer ward has been an imposition. But I thank him. This opportunity to help him has been good my for soul. If I can expunge a lifetime at anger towards him, I can deal with my anger issues for good. The other day he reminded of me when I knocked him out for calling me a “baby killer” in front of my girlfriend who had just had an abortion. He’s not the same person, and now I have a chance to be different.

Healing can take many forms. For my brother, it’s going to be regular radiation and chemo treatments, a bunch of pot, and hopefully a bed of his own. For me, just being here for him is the healing I needed.

Ron’s GoFundMe campaign: https://www.gofundme.com/f/help-house-my-brother-for-cancer-treatment?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer

He Ain’t Heavy, He’s My Little Brother

July 7, 2023

My little brother, Ronnie, and I took sibling rivalry to a new level. In fact, I’m quite sure we sent each other to the Emergency Room when we were kids. Our constant fighting must’ve driven our parents crazy. I know it did for me. It was the cause of some desperation, at age 16, when I first thought about throwing myself into a lake and drowning. (To be clear, the lake was a Stone Mountain, Georgia pond that was maybe three feet deep.) As an adult, I stopped talking to him for 17 years after he threatened to kill our mother. He did some time for that one.

Things have changed with my brother.

We started to reconnect in 2012, when I was back in Georgia. We visited some of our old stomping grounds in Stone Mountain and I learned how to talk to him in a non-antagonistic way. Ronnie has had a challenging life and I think our sibling dynamic played a roll. I wasn’t exactly the best big brother. I think Ronnie was the first target of my rolling anger that was the result of my abuse. I relished in the fight as that was my standard mode. When I could have been protective and nurturing, I was combative and cruel. So the reconnect was a chance for repair, especially when my bother fell into homelessness.

For the last few years, my brother has lived in the woods in Cartersville, Georgia, north of Atlanta. Cozy and I had lunch with him and my father in 2021 at the IHOP near his camp and he was skin and bones. We didn’t know it at the time, but he had cancer. We didn’t talk for 17 years, but we talk pretty much every day now, unless he can’t make it down to Kroger to charge his phone.

Trying to find Ronnie adequate cancer care in a backwards red state like Georgia has been next to impossible. Dissertations have been written on how the Republican Party has conned poor and working people to vote against their interests to pad the pockets of elites, but suffice it to say, being sick and poor in Georgia is a death sentence.

So I’m bringing my brother to Oregon.

The assumption in Georgia is that every poor person who claims to be sick is only after OxyContin, so the insane amount of bureaucratic bullshit that is required to even see a doctor guarantees poor and homeless people are cut out of the health care system. Ronnie’s cancer doctor was 46 miles away at Emory University and he was routinely too sick to even organize a ride to the city. Tired of missed appointments, they dropped him from their patient roll, a cost cutting measure that shortened my brother’s life expectancy. Social scientists know we can predict your life span by the zip code you live in and the death gap for Cartersville, Georgia is as wide as the Tallulah Gorge.

Oregon, on the other hand, expanded Medicaid under Obamacare, making sure low income people have first rate health and dental coverage. It took a matter of minutes to get Ronnie signed up to the Oregon Health Plan and get him space in a residential facility and an oncologist to start his cancer treatment. My mother was dumbfounded by how easy it was to get my brother the services he desperately needed. “Well, I live in a blue state, Mom,” I told her. Now I just have to get him here.

Early tomorrow morning, I’m catching a flight to Atlanta (paid for my father) to collect my little brother. The nature of his cancer is among the ugliest, anal cancer. He hasn’t been able to access the health supplies he needs so he’s often sleeping in his own waste. I’ve been Amazoning him colostomy bags, but he needs so much more, including diapers and clean clothes.  Getting him in shape to fly back across the country is going to take some work. He’s in great pain, without access to any sensible pain medicine, often sure he’s not going to live through the night. I assure him Oregon also has legal weed to help him through those nights. I would bring a bag of THC gummies with me from the corner pot shop, but in Georgia that would get you a one way trip to prison. (The penalty for possessing less than one ounce of marijuana is up to one year in prison and up to a $1,000 fine.) Did I mention that Georgia sucks?

These may be his last days or the wonderful care given to low income people in Oregon may extend his life considerably. Anything is better than being poor and sick in the South. I’m banking on him being alive when I get to Cartersville and being in good enough shape to get on the plane. I’m looking forward to our cross country trip and getting to know the guy I didn’t have time for when I was a kid.

DWM: Dating While Married

June 30, 2023

What are the rules of being separated? Nobody sent me the manual. Also, is there a handy guidebook to diagram the complexity of romantic love? I’m in the weeds out here.

The day A moved out the fall of 2021, I thought it would be a short term break while I figured my shit out. I was just at the beginning of understanding how my experience of childhood abuse had been controlling my brain. Therapy, some good reading, and quiet reflection, and we’d be fixed in a few months. A week after she moved out she told me she was “dating” someone (well, that wasn’t exactly the word she used) and that person quickly became her boyfriend, which didn’t help my intention to calmly become a better person.

In fact, it did the opposite. It unleashed my inner redneck. I’d go the bar that he frequented, order a double bourbon and imagine kicking his ass. Not exactly the practice of someone who leads workshops on mindfulness. Gradually, I came to accept her choice and focused back on my own work. If she’s happy, I’m happy. Blah, blah, blah. We were talking about divorce, but it always seemed to be on the back burner. And every time she’d breakup with this guy, she was back in my arms.

But by the end of 2022, I thought I should try this dating thing. I missed having a partner in crime. Someone to get out of the house with. Also, I was still angry my wife was spending all her free time with this guy. A friend suggested I go on the Bumble dating site. So I set up a profile and met some really great women; a flight attendant, an artist, and a movie producer, who I went to NYC to stay with for a week and is one of the most accomplished women I’ve ever met. But I felt like I was a performing a role; A and our fantasized reunion always on my mind. It just seemed like a hoax. So I cancelled Bumble and focused on winning her back.

Then all that changed.

Two weeks ago, I was feeling aggrieved because I felt like A was routinely disregarding me and I was all in my head about it. It was Friday and the start of her week with Cozy (and the end of her week with her boyfriend) and my Pisces brain was going to claim I had a date with a beautiful lawyer just to drive a splinter in. Then I took a left turn.

According to Facebook, I have over 2,800 friends. Some folks go way back to high school, some I don’t know how I know, and a whole bunch are dead. But there was someone in my feed who I didn’t know how I knew, I just knew she owned a Portland dress shop and was stunning. I found myself exploring her pictures, with her dogs, her family and friends, and travels. So I took a chance and messaged her.

Me: You’re always in my feed so I thought I should say hey!

Her: How are you doing? I’m rarely on Fb and miss a lot of messages so if I ignore you, I swear it’s nothing personal.

Me: Was just looking for some live music tonight. I need tunes.

Her: Ooh did you find anything good?!

Me: Usually I go to No Fun on Hawthorne for random bands. You should come out!

Her: Sounds fun! I’m down

And that’s how my relationship with Jaime started. She walked into a favorite SE Portland joint of mine, a bar called No Fun, and it was like a brand new chapter was about to unfold. We immediately clicked, like nothing I’d experienced before, while the band played TLC and Britney Spears songs. Sitting at the bar, we began to plan a trip to Paris and I said, “I’m going to kiss you tonight.” Then we ended up on the dance floor at Goodfoot, another local bar, for Soul Night, and by the second song we were already a couple.

I can’t explain what happened to my brain. All that bandwidth that had been taken up by my obsession with A, winning her back and/or hating that she was with this guy who I detested, just vanished. What did it mean? Was I not in love with her? My love for her had defined every day of my life for the past ten years. But my love for her was often about “my love” and not about her as a person. I was unable to repair that disconnect to lure her back. But now all I could think about was Jaime. It was like a channel had switched.

At first I felt the need to keep this new relationship on the down low. I didn’t know how to “frame” it. But after the April car crash that Cozy and I had been in (that totaled the RAV) and the cancer scare earlier this month, I know every second in this life matters.

Jaime and I quickly became connected at the hip. I wanted to learn everything about her. I wanted to not make the mistakes of the past. In a few days I was convinced that I could build something with her and finally release A from the crushing weight of being tied to my project. A seemed relieved that I had found someone, which was both nice and annoying. A week after our first meeting, A OK’d Jaime and I taking Cozy to a Portland Thorns soccer game. Seeing how wonderful she was with my daughter sealed the deal and I asked her to be my girlfriend.

I truly don’t understand the nature of love. My ten years with A, including the year and half separation, still carry a real meaning to me. She’s the mother of my child, but she has a boyfriend who I know she loves. I know there have been people rooting for us to reunite (and others who haven’t). When she told me a year ago, “I love you, but I’m not in love with you,” I laughed it off as the standard doldrums of marriage. But now I feel the same way.

All I know is that my heart has been kidnapped by someone I want to be with as much as possible. Cozy loves her madly and so do I. It came from out of the blue, but I know it’s real because she has me listening to Taylor Swift and thinking about my words before I say them. It may just be a summer affair or it may be something with some staying power. I don’t know and I don’t care and it feels damn good.

It’s nice not to worry about what people think. I just want to put all these lessons to work to keep this magic moment going that started on a Friday night in a bar called No Fun. As Taylor sang, “A string that pulled me, out of all the wrong arms, right into that dive bar. ” There is a golden string that now connects me to her and I can’t help but just say, “Yeah, well, it’s divine intervention.”

Tonight at 8:30 will be our two-week anniversary and it feels like I’ve known this person for a lifetime. Two weeks from now, I might be saying, “What the hell was THAT?” I have a feeling that we’ll be doing just fine. Love is a beautiful thing.

NOTE: I let Jaime read this before posting it. If she’s good, I’m good.